Bioethics Programs, Department of Social and Preventive Medicine, School of Public Health, Université de Montréal, Montreal, Canada.
Account Res. 2011 Nov;18(6):357-81. doi: 10.1080/08989621.2011.609443.
In this article, I study the challenges that make database and material bank sharing difficult for many researchers. I assert that if sharing is prima facie ethical (a view that I will defend), then any practices that limit sharing require justification. I argue that: 1) data and material sharing is ethical for many stakeholders; 2) there are, however, certain reasonable limits to sharing; and 3) the rationale and validity of arguments for any limitations to sharing must be made transparent. I conclude by providing general recommendations for how to ethically share databases and material banks.
在本文中，我研究了许多研究人员在数据库和材料库共享方面所面临的挑战。我断言，如果共享具有表面道德性（我将为之辩护的观点），那么任何限制共享的做法都需要理由。我认为：1）对于许多利益相关者来说，数据和材料共享是合乎道德的；2）然而，共享确实存在某些合理的限制；3）对于任何限制共享的理由和论点的合理性必须透明化。最后，我提供了关于如何在道德上共享数据库和材料库的一般建议。
