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分享的限制:对赞成和反对数据库和材料库共享的论据的伦理分析。

The limits of sharing: an ethical analysis of the arguments for and against the sharing of databases and material banks.

机构信息

Bioethics Programs, Department of Social and Preventive Medicine, School of Public Health, Université de Montréal, Montreal, Canada.

出版信息

Account Res. 2011 Nov;18(6):357-81. doi: 10.1080/08989621.2011.609443.

Abstract

In this article, I study the challenges that make database and material bank sharing difficult for many researchers. I assert that if sharing is prima facie ethical (a view that I will defend), then any practices that limit sharing require justification. I argue that: 1) data and material sharing is ethical for many stakeholders; 2) there are, however, certain reasonable limits to sharing; and 3) the rationale and validity of arguments for any limitations to sharing must be made transparent. I conclude by providing general recommendations for how to ethically share databases and material banks.

摘要

在本文中,我研究了许多研究人员在数据库和材料库共享方面所面临的挑战。我断言,如果共享具有表面道德性(我将为之辩护的观点),那么任何限制共享的做法都需要理由。我认为:1)对于许多利益相关者来说,数据和材料共享是合乎道德的;2)然而,共享确实存在某些合理的限制;3)对于任何限制共享的理由和论点的合理性必须透明化。最后,我提供了关于如何在道德上共享数据库和材料库的一般建议。

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