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乳腺癌康复的种族和文化模式。

Ethnicity and cultural models of recovery from breast cancer.

机构信息

Department of Community and Family Health, University of South Florida, Tampa, FL 33612, USA.

出版信息

Ethn Health. 2012;17(3):291-307. doi: 10.1080/13557858.2011.616188. Epub 2011 Oct 20.

DOI:10.1080/13557858.2011.616188
PMID:22011254
Abstract

OBJECTIVE

Recovery narratives describe the culturally shared understandings about the ideal or desirable way to recover from an illness experience. This paper examines ethnic differences in recovery narratives among women participating in breast cancer support groups in Central Florida, USA. It compares groups serving African-American, Latina, and European American women, with the objective of better understanding the appeal of ethnic-specific illness support groups for culturally diverse populations.

DESIGN

A mixed-method study design combined qualitative and quantitative measures, including in-depth interviews, participant observation at support group meetings, collection of printed documents, and a structured survey.

RESULTS

Core elements of the recovery narrative drew from the dominant societal cancer discourse of optimism and personal transformation through adversity; however, important ethnic differences were evident in the meaning assigned to these themes. Groups gave distinctive salience to themes of faith and spirituality, empowerment through the migration experience, and becoming a better person through the journey of recovery.

CONCLUSION

The findings suggest that ethnic cancer support groups draw upon dominant societal discourses about cancer, but they espouse distinctive recovery narratives that are consonant with the groups' cultural models of illness. Similarity between ethnic members' individual recovery narratives and that of the group may contribute to the appeal of ethnic illness support groups for culturally diverse populations.

摘要

目的

康复叙事描述了关于从疾病经历中恢复的理想或理想方式的文化共享理解。本文考察了美国佛罗里达州中部参加乳腺癌支持小组的女性在康复叙事中的种族差异,目的是更好地理解针对不同文化群体的特定族裔疾病支持小组的吸引力。

设计

混合方法研究设计结合了定性和定量措施,包括深入访谈、支持小组会议的参与观察、印刷文件的收集和结构化调查。

结果

康复叙事的核心要素借鉴了占主导地位的社会癌症话语,即通过逆境实现乐观和个人转变;然而,这些主题的含义存在明显的种族差异。各小组特别强调了信仰和精神、通过移民经历获得赋权以及通过康复之旅成为更好的人等主题。

结论

研究结果表明,族裔癌症支持小组借鉴了关于癌症的主流社会话语,但他们倡导独特的康复叙事,这些叙事与小组的疾病文化模式一致。族裔成员的个人康复叙事与小组的相似性可能有助于为不同文化群体提供族裔疾病支持小组的吸引力。

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