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直面癫痫的污名

Confronting the stigma of epilepsy.

作者信息

Thomas Sanjeev V, Nair Aparna

机构信息

Department of Neurology, Sree Chitra Tirunal Institute for Medical Sciences and Technology, Trivandrum, India.

出版信息

Ann Indian Acad Neurol. 2011 Jul;14(3):158-63. doi: 10.4103/0972-2327.85873.

Abstract

Stigma and resultant psychosocial issues are major hurdles that people with epilepsy confront in their daily life. People with epilepsy, particularly women, living in economically weak countries are often ill equipped to handle the stigma that they experience at multiple levels. This paper offers a systematic review of the research on stigma from sociology and social psychology and details how stigma linked to epilepsy or similar conditions can result in stereotyping, prejudice and discrimination. We also briefly discuss the strategies that are most commonly utilized to mitigate stigma. Neurologists and other health care providers, social workers, support groups and policy makers working with epilepsy need to have a deep understanding of the social and cultural perceptions of epilepsy and the related stigma. It is necessary that societies establish unique determinants of stigma and set up appropriate strategies to mitigate stigma and facilitate the complete inclusion of people with epilepsy as well as mitigating any existing discrimination.

摘要

耻辱感及由此产生的心理社会问题是癫痫患者在日常生活中面临的主要障碍。生活在经济薄弱国家的癫痫患者,尤其是女性,往往缺乏应对在多个层面所遭受耻辱感的能力。本文对社会学和社会心理学领域关于耻辱感的研究进行了系统综述,并详细阐述了与癫痫或类似病症相关的耻辱感如何导致刻板印象、偏见和歧视。我们还简要讨论了最常用于减轻耻辱感的策略。与癫痫患者打交道的神经科医生和其他医疗服务提供者、社会工作者、支持团体及政策制定者,需要深入了解社会和文化对癫痫的认知以及相关耻辱感。社会有必要确定耻辱感的独特决定因素,并制定适当策略以减轻耻辱感,促进癫痫患者的完全融入,同时减少任何现有的歧视。

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