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菲律宾心理健康问题和癫痫患者所经历污名的定性研究。

A qualitative study on the stigma experienced by people with mental health problems and epilepsy in the Philippines.

机构信息

Graduate School of Health Sciences, Kobe University, 701, 2-6-2, Yamamoto-dori, Chuo-ku, Kobe, Hyogo, 650-0003, Japan.

City Health Office, City Government of Muntinlupa, Muntinlupa, Philippines.

出版信息

BMC Psychiatry. 2018 Oct 5;18(1):325. doi: 10.1186/s12888-018-1902-9.

Abstract

BACKGROUND

Stigma towards people with mental health problems (PMHP) is known to have substantial negative impacts on their lives. More in-depth exploration of the stigma and discrimination experienced by PMHP in low- and middle-income countries is needed. Previous research suggests that negative attitudes towards PMHP are widespread among the Filipino general public. However, no study has investigated PMHP's own experiences of being stigmatised in the Philippines.

METHODS

A qualitative study was conducted on the stigma experienced by PMHP (including people with epilepsy) and its related factors in the Philippines, employing the constructivist grounded theory approach. We analysed data on 39 PMHP collected through interviews with PMHP, their carers, and community health volunteers who know them well.

RESULTS

The findings highlight the culturally and socio-economically specific contexts, consequences, and impact modifiers of experiences of stigma. Participants emphasised that PMHP face stigma because of the cultural traits such as the perception of mental health problem as a disease of the family and the tendency to be overly optimistic about the severity of the mental health problem and its impact on their life. Further, stigma was experienced under conditions where mental health care was not readily available and people in the local community could not resolve the PMHP's mental health crisis. Stigma experiences reduced social networks and opportunities for PMHP, threatened the economic survival of their entire family, and exacerbated their mental health problems. An individual's reaction to negative experiences can be fatalistic in nature (e.g. believing in it is God's will). This fatalism can help PMHP to remain hopeful. In addition, traditional communal unity alleviated some of the social exclusion associated with stigma.

CONCLUSIONS

The study indicates that existing stigma-reduction strategies might have limitations in their effectiveness across cultural settings. Therefore, we propose context-specific practical implications (e.g. emphasis on environmental factors as a cause of mental health problems, messages to increase understanding not only of the possibility of recovery but also of challenges PMHP face) for the Philippines.

摘要

背景

人们已知对心理健康问题患者(PMHP)的污名化会对他们的生活产生实质性的负面影响。需要更深入地探索中低收入国家的 PMHP 所经历的污名化和歧视。先前的研究表明,菲律宾普通公众对 PMHP 的负面态度普遍存在。然而,尚无研究调查过 PMHP 在菲律宾自身所经历的污名化。

方法

本研究采用建构主义扎根理论方法,对菲律宾 PMHP(包括癫痫患者)及其相关因素所经历的污名进行了定性研究。我们分析了通过对 39 名 PMHP 进行访谈收集的数据,这些 PMHP 包括他们的照顾者以及熟悉他们的社区卫生志愿者。

结果

研究结果突出了经历污名化的文化和社会经济特定背景、后果和影响修饰因素。参与者强调,PMHP 面临污名化,是因为文化特征,例如将心理健康问题视为家庭疾病的观念以及对心理健康问题的严重程度及其对生活的影响过于乐观的倾向。此外,在心理健康护理不易获得且当地社区的人无法解决 PMHP 的心理健康危机的情况下,会出现污名化。污名化经历减少了 PMHP 的社交网络和机会,威胁到他们整个家庭的经济生存,并使他们的心理健康问题恶化。个人对负面经历的反应可能是宿命论的(例如,相信这是上帝的旨意)。这种宿命论可以帮助 PMHP 保持希望。此外,传统的社区团结减轻了与污名化相关的一些社会排斥。

结论

研究表明,现有的减少污名化策略在跨文化环境中的有效性可能存在局限性。因此,我们为菲律宾提出了具体的实际建议(例如,强调环境因素是心理健康问题的原因,不仅要传达对康复可能性的理解,还要传达对 PMHP 所面临挑战的理解)。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a6d0/6173886/5d5e20fd1080/12888_2018_1902_Fig1_HTML.jpg

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