School of Nursing and Midwifery, Curtin University, Perth, WA 6845, Australia.
Palliat Med. 2012 Dec;26(8):994-1000. doi: 10.1177/0269216311426918. Epub 2011 Nov 7.
Despite a recognized need for a palliative approach to caring for people with motor neurone disease (MND), access to palliative care is often limited.
This project aimed to improve the knowledge of health professionals about a palliative approach to MND care.
A three-phase study was undertaken to develop, implement and evaluate an education program for health professionals that promoted a palliative approach to MND care. This paper discusses the second and third phases: the implementation and evaluation of the project. Education workshops were held for health professionals. Their knowledge of palliative care was measured before and after the workshops and one month later. Attitudes to providing MND care were also measured.
Workshops were held in South Australia and Western Australia. Participants were health professionals working in the areas of MND care or palliative care. Some aged care and generalist health professionals were included if they had a role in providing care to people with MND.
The participants demonstrated an improvement in MND knowledge (χ(2) = 64.13(2), p = 0.000) and palliative care knowledge (χ(2) = 17.24(2), p = 0.000); both were sustained at one month. Attitudes to providing MND care also improved (χ(2) = 11.85(2), p = 0.003) and were maintained at the six-month follow-up. Participants indicated that the knowledge gained positively influenced their clinical practice.
A targeted education program for health professionals improved understanding about end-of-life care for people with MND. Health care providers also reported having made improvements in the care provided to patients and carers, particularly communication, psychosocial care and symptom management.
尽管人们认识到需要对肌萎缩侧索硬化症（ALS）患者采取姑息治疗方法，但获得姑息治疗的机会往往有限。
本项目旨在提高卫生专业人员对 ALS 姑息治疗方法的认识。
开展了一项三阶段研究，以开发、实施和评估一项针对卫生专业人员的教育计划，该计划促进了对 ALS 患者的姑息治疗方法。本文讨论了第二和第三阶段：项目的实施和评估。为卫生专业人员举办了教育研讨会。在研讨会之前、之后和一个月后测量他们对姑息治疗的了解。还测量了他们对提供 ALS 护理的态度。
研讨会在南澳大利亚州和西澳大利亚州举行。参与者是从事 ALS 护理或姑息护理的卫生专业人员。如果他们在为 ALS 患者提供护理方面发挥作用，也包括一些老年护理和全科卫生专业人员。
参与者在 ALS 知识（χ² = 64.13(2)，p = 0.000）和姑息治疗知识（χ² = 17.24(2)，p = 0.000）方面都有所提高，且一个月后仍保持不变。提供 ALS 护理的态度也有所改善（χ² = 11.85(2)，p = 0.003），并在六个月的随访中保持不变。参与者表示，所获得的知识对他们的临床实践产生了积极影响。
针对卫生专业人员的有针对性的教育计划提高了对 ALS 患者临终关怀的理解。医疗保健提供者还报告说，他们在为患者和照顾者提供的护理方面有所改进，特别是沟通、心理社会护理和症状管理。
