Division of Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center 3333 Burnet Ave, MLC 3015, Cincinnati, OH 45229-3039, USA.
J Cyst Fibros. 2012 Mar;11(2):125-30. doi: 10.1016/j.jcf.2011.10.006. Epub 2011 Nov 22.
A combined behavior-nutrition approach is recommended for children with CF with growth deficits. The present study aimed to use a qualitative approach to 1) understand families' experiences using behavior-nutrition intervention strategies and 2) identify the challenges with CF management families experienced during the developmental transition between toddlerhood and early school-age.
Eight families (mean age of children=8.2 years) participated in a semistructured interview. Themes were independently identified by three coders, confirmed via consensus, and compared to a reliability coder.
Parents discussed behavior and nutrition strategies, ongoing challenges with nutrition and behavior, new challenges, and protective factors. Challenges included transition to school, transfer of treatment responsibility, picky eating, and parental stress.
Ongoing assessment and recommendations to address parent stress and child behavior are warranted. Providing families with anticipatory guidance can better prepare families for challenging developmental transitions including starting school and the transfer of treatment responsibility.
对于存在生长缺陷的 CF 患儿，建议采用行为营养综合干预方法。本研究旨在采用定性方法：1）了解家庭使用行为营养干预策略的经验；2）在幼儿期到学龄早期的发育过渡期间，确定 CF 管理家庭所面临的挑战。
8 个家庭（儿童平均年龄=8.2 岁）参与了半结构化访谈。主题由 3 名编码员独立确定，通过共识确认，并与可靠性编码员进行比较。
父母讨论了行为和营养策略、持续存在的营养和行为挑战、新挑战和保护因素。挑战包括入学过渡、治疗责任转移、挑食和父母压力。
需要对家长压力和儿童行为进行持续评估和建议。为家庭提供预期指导可以更好地为具有挑战性的发展过渡做准备，包括入学和治疗责任转移。
