Smith Melissa M, Goodfellow Linda
Division of Nursing, Aultman College of Nursing and Health Sciences, Canton, Ohio 44710, USA.
Gastroenterol Nurs. 2011 Nov-Dec;34(6):460-8. doi: 10.1097/SGA.0b013e318237d201.
In the United States, the prevalence of celiac disease has increased from 1 in 4,600 persons to 1 in 133 persons during the past 10 years. Although celiac disease can be managed by strict adherence to a gluten-free diet, dietary management can be challenging. A descriptive, correlational design was used to examine factors and perceived causes that interfere with adherence to a gluten-free diet, identify coping strategies, and examine the relationship between coping strategies and quality of life in 156 adults with a diagnosis of celiac disease. The Psychological General Well-Being Index and the Brief COPE were used to measure the major variables. Results indicated that problems outside the home interfere with dietary adherence. A moderate negative significant relationship (r [154] = -.46, p < .01) was found between quality of life and stress, with 54% of participants reporting a minimal amount of stress. Emotion-focused coping was found to have a significant negative effect on quality of life (H[18] = 56.67, p < .001). Implications for future research should include investigation of cognitive behavioral interventions to decrease the negative effects of stress on quality of life for adults with celiac disease adhering to a gluten-free diet.
在美国，过去10年中乳糜泻的患病率已从4600人中的1例增加到133人中的1例。尽管严格遵循无麸质饮食可以控制乳糜泻，但饮食管理可能具有挑战性。本研究采用描述性、相关性设计，以调查干扰无麸质饮食依从性的因素和感知到的原因，确定应对策略，并研究156名确诊为乳糜泻的成年人的应对策略与生活质量之间的关系。使用心理总体幸福感指数和简易应对方式问卷来测量主要变量。结果表明，家庭以外的问题会干扰饮食依从性。生活质量与压力之间存在中度负相关（r[154]=-.46，p<.01），54%的参与者报告压力最小。以情绪为中心的应对方式被发现对生活质量有显著负面影响（H[18]=56.67，p<.001）。对未来研究的启示应包括调查认知行为干预措施，以减少压力对坚持无麸质饮食的乳糜泻成年患者生活质量的负面影响。
