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库里蒂巴福音医院皮肤科门诊所见麻风病患者概况。

Profile of patients affected by Hansen's disease seen at the Outpatient Clinic of Dermatology at Hospital Evangélico de Curitiba.

作者信息

Budel Anelise Roskamp, Raymundo Anelise Rocha, Costa Carla Fabiane da, Gerhardt Cristina, Pedri Lucas Eduardo

机构信息

Serviço de Dermatologia, Hospital Universitário Evangélico de Curitiba, Faculdade Evangélica do Paraná, Brasil.

出版信息

An Bras Dermatol. 2011 Sep-Oct;86(5):942-6. doi: 10.1590/s0365-05962011000500012.

Abstract

BACKGROUND

Leprosy or Hansen's disease is a chronic infectious disease with worldwide distribution. Although it is a curable disease, it remains as a public health problem, with Brazil being the second most endemic country in the world. The skin lesions and neural damage, which lead to physical disabilities, affect the patients' self-esteem, cause a decrease in quality of life and interfere in the patients' lives.

OBJECTIVE

Identify the profile of the patients affected by leprosy seen at the Outpatient Clinic of Dermatology of Hospital Evangélico de Curitiba and characterize the levels of quality of life of the sample in the week prior to the survey by means of the Dermatology Life Quality Index questionnaire.

METHOD

Application of the Dermatology Life Quality Index to 22 patients diagnosed with leprosy in the period from May to October 2009.

RESULTS

Among the 22 patients who participated in the study, 55% were male and 45% were female, with a mean age of 50.2 years. The scores obtained with the Dermatology Life Quality Index ranged from 1 to 25 points, with a mean of 10.23. Most of the patients (50%) had scores in the range severe or very severe; 31.8% of the patients obtained scores in the range mild or moderate, and 18.2% of the patients reported that there was no impairment of their quality of life.

CONCLUSION

The profile of the patients affected by leprosy in this study were men, with a mean age of 50 years and presenting the multibacillary form of the disease. The application of the Dermatology Life Quality Index questionnaire allowed us to verify that the score severe or very severe for quality of life was predominant in the sample, with higher impact on women and no significant difference concerning pauci or multibacillary leprosy.

摘要

背景

麻风病或汉森病是一种在全球范围内分布的慢性传染病。尽管它是一种可治愈的疾病,但仍然是一个公共卫生问题,巴西是世界上第二大流行国家。导致身体残疾的皮肤病变和神经损伤会影响患者的自尊心,导致生活质量下降并干扰患者的生活。

目的

确定在库里蒂巴福音医院皮肤科门诊就诊的麻风病患者的特征,并通过皮肤病生活质量指数问卷来描述调查前一周样本的生活质量水平。

方法

在2009年5月至10月期间,对22名被诊断为麻风病的患者应用皮肤病生活质量指数。

结果

参与研究的22名患者中,55%为男性,45%为女性,平均年龄为50.2岁。皮肤病生活质量指数获得的分数范围为1至25分,平均分为10.23分。大多数患者(50%)的分数在重度或极重度范围内;31.8%的患者分数在轻度或中度范围内,18.2%的患者报告其生活质量没有受损。

结论

本研究中受麻风病影响的患者特征为男性,平均年龄50岁,呈现多菌型麻风病。皮肤病生活质量指数问卷的应用使我们能够验证,样本中生活质量得分为重度或极重度的情况占主导,对女性的影响更大,且在少菌型或多菌型麻风病方面无显著差异。

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