Nabukera Sarah K, Romitti Paul A, Campbell Kimberly A, Meaney F John, Caspers Kristin M, Mathews Katherine D, Sherlock Stacey M Hockett, Puzhankara Soman, Cunniff Christopher, Druschel Charlotte M, Pandya Shree, Matthews Dennis J, Ciafaloni Emma
Department of Epidemiology, The University of Iowa, Iowa City, IA 52242-5000, USA.
J Child Neurol. 2012 Jun;27(6):734-40. doi: 10.1177/0883073811426501. Epub 2011 Dec 7.
Use of complementary and alternative medicine by males with Duchenne or Becker muscular dystrophy was examined using interview reports from caregivers enrolled in the population-based Muscular Dystrophy Surveillance, Tracking, and Research Network. Of the 200 caregivers interviewed, 160 (80%) reported "ever" using complementary and alternative medicine for their affected children. Mind-body medicine (61.5%) was most frequently used, followed by biologically based practices (48.0%), manipulative and body-based practices (29.0%), and whole medical systems (8.5%). Caregivers reporting use of whole medical systems had higher education and income levels compared with nonusers; affected males had shorter disease duration. Caregivers reporting use of mind-body medicine, excluding aquatherapy, had higher education level compared with nonusers. Overall, complementary and alternative medicine use was high; disease duration, education, and income levels influenced use. These findings have implications for developing clinical care protocols and monitoring possible interactions between complementary and alternative medicine and conventional medical therapies.
我们利用参与基于人群的肌营养不良症监测、追踪和研究网络的照料者的访谈报告，对患有杜氏或贝克肌营养不良症的男性使用补充和替代医学的情况进行了调查。在接受访谈的200名照料者中，有160名（80%）报告曾为其患病子女使用过补充和替代医学。身心医学（61.5%）是最常使用的，其次是基于生物学的疗法（48.0%）、手法和身体疗法（29.0%）以及完整医学体系（8.5%）。与未使用者相比，报告使用完整医学体系的照料者具有更高的教育水平和收入水平；患病男性的病程较短。与未使用者相比，报告使用身心医学（不包括水疗）的照料者具有更高的教育水平。总体而言，补充和替代医学的使用率较高；病程、教育水平和收入水平影响了其使用情况。这些发现对于制定临床护理方案以及监测补充和替代医学与传统医学疗法之间可能的相互作用具有重要意义。
