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智障及多重残疾儿童母亲的残疾影响与应对方式

Disability impact and coping in mothers of children with intellectual disabilities and multiple disabilities.

作者信息

Kishore M Thomas

机构信息

Centre or Health Psychology, University of Hyderabad, India.

出版信息

J Intellect Disabil. 2011 Dec;15(4):241-51. doi: 10.1177/1744629511431659. Epub 2011 Dec 9.

DOI:10.1177/1744629511431659
PMID:22158461
Abstract

Understanding the disability impact on parenting and caregiving is important for intervention. The present study was designed to understand the differences in perceived disability impact and related coping in mothers having children with intellectual disabilities alone compared to those having children with intellectual disabilities and additional disabilities. Accordingly, 30 mothers of children with intellectual disabilities and 30 mothers of children with intellectual and additional disabilities were assessed for disability impact and coping. Group differences for disability impact were present in specific domains but not overall. Despite variations in coping pattern, both positive and negative coping strategies were observed in both groups. The results may imply that the impact of intellectual disability is so pervasive that except in certain domains mothers may not perceive the further impact of additional disabilities. Positive coping does not rule out negative coping strategies. These findings have specific relevance to service delivery in a cultural context.

摘要

了解残疾对育儿和照料的影响对于干预措施至关重要。本研究旨在了解仅育有智力残疾儿童的母亲与育有智力残疾且伴有其他残疾儿童的母亲在感知到的残疾影响及相关应对方式上的差异。因此,对30名智力残疾儿童的母亲和30名智力残疾且伴有其他残疾儿童的母亲进行了残疾影响和应对方面的评估。在特定领域存在残疾影响的组间差异,但总体上不存在。尽管应对模式存在差异,但两组均观察到了积极和消极的应对策略。结果可能意味着智力残疾的影响非常普遍,以至于除了某些领域外,母亲们可能并未察觉到其他残疾带来的进一步影响。积极应对并不排除消极应对策略。这些发现对于文化背景下的服务提供具有特殊意义。

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