Programa de Medicina Paliativa y Cuidados Continuos, Departamento de Medicina Interna, Pontificia Universidad Católica de Chile, Santiago, Chile.
Psychooncology. 2012 Sep;21(9):913-21. doi: 10.1002/pon.2099. Epub 2011 Dec 8.
Decrease in oral intake, weight loss, and muscular weakness in the last phases of a terminal illness, particularly in the context of the cachexia-anorexia syndrome, can be an important source of anxiety for the triad of patient, family, and health staff.
The present literature review examines the emotional impact of reduced oral intake as well as perceptions and attitudes toward assisted nutrition and hydration for terminally ill patients(1) at the end of life, among patients, family, and health care staff. We have identified the ways in which emotional and cultural factors influence decision-making about assisted nutrition and hydration.
Lack of information and misperceptions of medically assisted nutrition and hydration can play a predominant role in the decision to begin or suspend nutritional or hydration support.
Our literature review reveals that these social, emotional, and clinical misperception elements should be considered in the decision-making processes to help the triad develop functional forms of care at this final stage of life. Copyright © 2011 John Wiley & Sons, Ltd.
在疾病终末期，患者的食欲下降、体重减轻和肌肉无力，尤其是在恶液质-厌食症综合征的情况下，可能会成为患者、家属和医护人员这三方焦虑的重要来源。
本文献复习考察了在生命终末期，患者、家属和医护人员对减少经口摄入以及对终末期患者进行辅助营养和水合作用的看法和态度所产生的情绪影响。我们已经确定了情感和文化因素如何影响对辅助营养和水合作用的决策。
缺乏信息和对医疗辅助营养和水合作用的误解可能在决定开始或停止营养或水合支持方面起着主要作用。
我们的文献综述表明，在决策过程中应考虑这些社会、情感和临床误解因素，以帮助三方在生命的最后阶段制定功能化的护理形式。版权所有 © 2011 年 John Wiley & Sons, Ltd.
