Lymphedema Program, McGill University Health Centre, Montreal, QC.
Curr Oncol. 2011 Dec;18(6):e260-4. doi: 10.3747/co.v18i5.787.
The aim of this study was to gather data from Canadian stakeholders to help construct a national strategy and agenda for lymphedema management.
The Canadian Lymphedema Framework, a collaboration of medical academics, lymphedema therapists, patient advocates, and others, used participatory action research and Open Space Technology to identify issues and build consensus at a national meeting of lymphedema stakeholders. Proceedings were videotaped and underwent content analysis. Existing Canadian documentation on lymphedema services was analyzed. Using those data sources, the Canadian Lymphedema Framework drafted a development strategy.
Of 320 invited stakeholders (patients, therapists, physicians, industry representatives, and health policymakers), 108 participated in a day-long videotaped meeting discussing strategies to improve the management of lymphedema and related disorders in Canada. Participants identified barriers, challenges, and issues related to the need to raise awareness about lymphedema with patients, physicians, and the public. Five priority areas for development were articulated: education, standards, research, reimbursement and access to treatment, and advocacy. The main barrier to development was identified as the lack of clear responsibility within the health care system for lymphedema care.
Data from stakeholders was obtained to solidly define priority areas for lymphedema development at a national level. The Canadian Lymphedema Framework has created a working plan, an advisory board, and working groups to implement the strategy.
本研究旨在从加拿大利益相关者那里收集数据，以帮助构建国家淋巴水肿管理战略和议程。
加拿大淋巴水肿框架是医学学者、淋巴水肿治疗师、患者权益倡导者和其他利益相关者的合作项目，采用参与式行动研究和开放空间技术，在全国淋巴水肿利益相关者会议上确定问题并达成共识。会议过程进行了录像，并进行了内容分析。对加拿大现有的淋巴水肿服务文件进行了分析。利用这些数据源，加拿大淋巴水肿框架起草了一项发展战略。
在 320 名受邀的利益相关者（患者、治疗师、医生、行业代表和卫生政策制定者）中，有 108 人参加了为期一天的录像会议，讨论了改善加拿大淋巴水肿和相关疾病管理的策略。与会者确定了与提高患者、医生和公众对淋巴水肿认识相关的障碍、挑战和问题。确定了五个优先发展领域：教育、标准、研究、报销和治疗机会以及宣传。发展的主要障碍被确定为卫生保健系统中缺乏明确的淋巴水肿护理责任。
从利益相关者那里获得的数据为在国家层面明确淋巴水肿发展的优先领域提供了依据。加拿大淋巴水肿框架已经创建了一个工作计划、一个顾问委员会和工作组来实施该战略。
