Paediatric Psychosocial Department, Emma Children's Hospital Academic Medical Centre, University of Amsterdam, Amsterdam, The Netherlands.
Psychooncology. 2013 Mar;22(3):708-14. doi: 10.1002/pon.2112. Epub 2011 Dec 26.
The aim of this study was to investigate whether an unfavourable psychosocial developmental trajectory while growing up with childhood cancer is related to a smaller likelihood of labour participation in adult life.
A total of 53 childhood cancer survivors (CCS) with and 313 CCS without disability benefits, and 508 peers from the general Dutch population (reference group) completed the Course of Life Questionnaire (CoLQ) about the achievement of psychosocial developmental milestones. Differences between the three groups were tested by conducting analysis of variance with contrasts (scale scores CoLQ) and logistic regression analysis (individual milestones). Effect sizes and odds ratios were calculated.
Compared with the reference group, both CCS with and CCS without benefits reported lower scale scores with respect to social and psychosexual development. CCS with disability benefits had lower social (d = - 0.6; p < 0.001) and psychosexual (d = -0.4; p < 0.01) scale scores than the CCS without disability benefits. CCS with disability benefits scored less favourably (p < 0.01) than peers from the general population on 14 out of 22 psychosocial milestones whereas the number was only six for those without disability benefits.
CCS with an unfavourable developmental trajectory while growing up were more likely to apply for disability benefits in adulthood than CCS with a more favourable development. Early recognition and support are warranted. Further research is needed on risk factors of application for disability benefits. In addition, research should show whether stimulating the achievement of developmental milestones while growing up will create conditions for a better labour market position.
本研究旨在探讨儿童癌症患者在成长过程中是否存在不良的心理社会发展轨迹,是否与成年后参与劳动力的可能性较小有关。
共有 53 名患有癌症的儿童幸存者(CCS)和 313 名没有残疾津贴的 CCS,以及 508 名来自荷兰普通人群的同龄人(参照组)完成了关于心理社会发展里程碑的生活课程问卷(CoLQ)。通过方差分析与对比(CoLQ 量表得分)和逻辑回归分析(个体里程碑)来测试三组之间的差异。计算了效应大小和优势比。
与参照组相比,有残疾津贴和没有残疾津贴的 CCS 报告的社会和性心理发展量表得分均较低。有残疾津贴的 CCS 的社会(d = - 0.6;p < 0.001)和性心理(d = -0.4;p < 0.01)量表得分均低于没有残疾津贴的 CCS。有残疾津贴的 CCS 在 22 个心理社会里程碑中的 14 个方面的得分不如普通人群的同龄人(p < 0.01),而没有残疾津贴的 CCS 则只有 6 个方面。
在成长过程中存在不良发展轨迹的 CCS 比发展更为有利的 CCS 更有可能在成年后申请残疾津贴。需要早期识别和支持。需要进一步研究申请残疾津贴的风险因素。此外,研究还应表明,在成长过程中促进发展里程碑的实现是否会为更好的劳动力市场地位创造条件。