Psychosocial Department, Emma Children's Hospital, Academic Medical Center, University of Amsterdam, the Netherlands.
Acta Paediatr. 2012 Jan;101(1):e19-26. doi: 10.1111/j.1651-2227.2011.02418.x. Epub 2011 Aug 11.
A growing number of young adults with somatic diseases/disabilities since childhood apply for disability benefits. The achievement of psychosocial milestones while growing up (course of life) is assumed to be related to job participation. This study assessed the course of life of young adult beneficiaries with somatic limitations compared with peers from the general Dutch population.
Young adult beneficiaries (22-31 years, N = 415) completed the Course of Life Questionnaire assessing the achievement of milestones on autonomy, psychosexual and social development and risk behaviour. Differences between respondents and peers were tested using analysis of variance and logistic regression analysis by group, age and gender. Associations were expressed as odds ratios (OR) with confidence intervals.
The beneficiaries achieved fewer milestones or achieved the milestones at a later age than peers. The differences were substantial: most effect sizes were moderate to large and most of the ORs lower than 0.5.
Young adult beneficiaries with somatic limitations since childhood are at risk of a delayed course of life. Healthcare providers should pay systematic attention to the psychosocial developmental trajectory of their patients in order to optimize their development to adulthood and, consequently, create conditions for an optimal labour market position.
越来越多自幼患有躯体疾病/残疾的青年成人申请残疾津贴。人们认为，在成长过程中（生活轨迹）达到心理社会里程碑与参与工作有关。本研究评估了与荷兰普通人群中的同龄人相比，患有躯体障碍的青年成人受益人的生活轨迹。
415 名 22-31 岁的青年成人受益人完成了生活轨迹问卷，评估了自主、心理-性和社会发展以及风险行为方面的里程碑的实现情况。通过组间、年龄和性别比较，使用方差分析和逻辑回归分析来测试受访者与同龄人之间的差异。关联用比值比（OR）及其置信区间表示。
与同龄人相比，受益人达到的里程碑更少，或者达到里程碑的年龄更大。差异显著：大多数效应量为中到大，大多数 OR 低于 0.5。
自幼患有躯体障碍的青年成人受益人的生活轨迹存在延迟的风险。医疗保健提供者应系统关注其患者的心理社会发展轨迹，以优化他们向成年期的发展，从而为他们在劳动力市场中获得最佳地位创造条件。
