《终末期肾病青少年有效同伴支持：酷营混合方法评价》。
Effective peer-to-peer support for young people with end-stage renal disease: a mixed methods evaluation of Camp COOL.
机构信息
Centre of Expertise Innovations in Care, Rotterdam University, P,O, Box 25035, 3001 HA Rotterdam, the Netherlands.
出版信息
BMC Nephrol. 2013 Dec 21;14:279. doi: 10.1186/1471-2369-14-279.
BACKGROUND
The Camp COOL programme aims to help young Dutch people with end-stage renal disease (ESRD) develop self-management skills. Fellow patients already treated in adult care (hereafter referred to as 'buddies') organise the day-to-day program, run the camp, counsel the attendees, and also participate in the activities. The attendees are young people who still have to transfer to adult care. This study aimed to explore the effects of this specific form of peer-to-peer support on the self-management of young people (16-25 years) with ESRD who participated in Camp COOL (CC) (hereafter referred to as 'participants').
METHODS
A mixed methods research design was employed. Semi-structured interviews (n = 19) with initiators/staff, participants, and healthcare professionals were conducted. These were combined with retrospective and pre-post surveys among participants (n = 62), and observations during two camp weeks.
RESULTS
Self-reported effects of participants were: increased self-confidence, more disease-related knowledge, feeling capable of being more responsible and open towards others, and daring to stand up for yourself. According to participants, being a buddy or having one positively affected them. Self-efficacy of attendees and independence of buddies increased, while attendees' sense of social inclusion decreased (measured as domains of health-related quality of life). The buddy role was a pro-active combination of being supervisor, advisor, and leader.
CONCLUSIONS
Camp COOL allowed young people to support each other in adjusting to everyday life with ESRD. Participating in the camp positively influenced self-management in this group. Peer-to-peer support through buddies was much appreciated. Support from young adults was not only beneficial for adolescent attendees, but also for young adult buddies. Paediatric nephrologists are encouraged to refer patients to CC and to facilitate such initiatives. Together with nephrologists in adult care, they could take on a role in selecting buddies.
背景
Camp COOL 计划旨在帮助荷兰终末期肾病（ESRD）的年轻人培养自我管理技能。已经在成人护理中接受治疗的同伴（此后称为“伙伴”）组织日常活动、管理营地、为参与者提供咨询，并且也参与活动。参与者是仍需要转至成人护理的年轻人。本研究旨在探讨这种特定形式的同伴支持对参加 Camp COOL（CC）的患有 ESRD 的年轻人（16-25 岁）的自我管理的影响（以下简称“参与者”）。
方法
采用混合方法研究设计。对发起人/工作人员、参与者和医疗保健专业人员进行了半结构化访谈（n = 19）。将这些访谈与参与者的回顾性和前后测调查（n = 62）以及两个营地周的观察相结合。
结果
参与者自我报告的影响包括：自信心增强、更多的疾病相关知识、感觉更有能力承担更多的责任和对他人更加开放、敢于为自己挺身而出。根据参与者的说法，成为伙伴或拥有一个伙伴对他们产生了积极的影响。参与者的自我效能感和独立性增加，而参与者的社会包容感下降（作为健康相关生活质量的领域来衡量）。伙伴角色是一种积极主动的结合，包括监督者、顾问和领导者。
结论
Camp COOL 让年轻人能够相互支持，适应 ESRD 的日常生活。参加营地对该群体的自我管理产生了积极影响。通过伙伴进行的同伴支持受到了高度赞赏。来自年轻成年人的支持不仅对青少年参与者有益，而且对年轻的成年伙伴也有益。鼓励儿科肾病学家将患者转介到 CC，并促进此类举措。他们可以与成人护理中的肾病学家一起，在选择伙伴方面发挥作用。
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