Politis C, Di Palma A, Fisfis M, Giasanti A, Richardson S C, Vullo C, Masera G
Thalassaemia Unit, Hellenic Red Cross Hospital, Athens, Greece.
Arch Dis Child. 1990 Sep;65(9):984-6. doi: 10.1136/adc.65.9.984.
Because social policy favours the fullest possible social integration of chronically ill patients, we have evaluated the facilities that are needed to achieve this for patients with beta thalassaemia major in the light of the therapeutic advances that now permit them to survive into adulthood. We have investigated the social integration of adolescent and young adult thalassaemic patients, 171 from Greece and 112 from Ferrara in Italy. Patients in both areas show a good level of social integration and favourable self image, indicating what may be achieved by providing psychosocial support as part of a comprehensive approach to treatment.
由于社会政策支持慢性病患者尽可能充分地融入社会，我们根据目前使重型β地中海贫血患者能够存活至成年期的治疗进展，评估了实现这一目标所需的设施。我们调查了来自希腊的171名和来自意大利费拉拉的112名青少年及青年地中海贫血患者的社会融入情况。这两个地区的患者都表现出了良好的社会融入水平和积极的自我形象，表明在综合治疗方法中提供心理社会支持可能取得的成效。
