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[地中海贫血的心理层面]

[Psychological aspects of thalassemia].

作者信息

Massaglia P, Pozzan M T, Piga A, Davico S, Luzzatto L, Carpignano M

出版信息

Pediatr Med Chir. 1986 Jan-Feb;8(1):27-31.

PMID:3725610
Abstract

An account is given of the model employed for the provision of psychological care over the last 9 years at the Microcythemia Centre, Department of Paediatrics, University of Turin, by a team composed of paediatricians and child neuropsychiatrists. Reference is made to a series of 280 patients aged 0-25 years. The psychodynamic is adopted and provision is made for individual and group meetings with young and adolescent patients and their parents that are held as part of the Centre's ordinary activities. This procedure has made it possible to understand and face up to the psychological implications of thalassaemia and its treatment and has considerably improved both compliance and the quality of life. Stress is laid on the importance of a good rapport between patients and the Centre. This can be obtained through continuous collaboration between physicians and psychiatrists and or psychologists with a psychodynamic background.

摘要

本文介绍了都灵大学儿科学系小细胞贫血中心在过去9年中由儿科医生和儿童神经精神科医生组成的团队所采用的心理护理模式。文中提到了一系列年龄在0至25岁之间的280名患者。采用了心理动力学方法,并为年轻和青少年患者及其父母安排了个人和小组会议,这些会议是该中心日常活动的一部分。这一程序使得能够理解和应对地中海贫血及其治疗的心理影响,并显著提高了依从性和生活质量。强调了患者与中心之间良好关系的重要性。这可以通过医生与具有心理动力学背景的精神科医生和/或心理学家之间的持续合作来实现。

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Thalassaemia: a study on the perception of patients and family members.地中海贫血:一项关于患者及其家庭成员认知的研究
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引用本文的文献

1
Psychological problems and quality of life in children with thalassemia.地中海贫血患儿的心理问题与生活质量
Indian J Pediatr. 2007 Aug;74(8):727-30. doi: 10.1007/s12098-007-0127-6.