Department of Region Cooperation, Ohtawara Red Cross Hospital, Tochigi, Japan.
J Palliat Med. 2012 Feb;15(2):210-5. doi: 10.1089/jpm.2011.0248. Epub 2012 Jan 27.
The aim of this study was to develop a tool to measure the family's difficulties in caring for cancer patients at the end of life at home: Family's Difficulty Scale in end-of-life home care (FDS).
The draft of the FDS was derived from a pilot interview survey and literature reviews. The questionnaires were sent to 395 bereaved family caregivers whose family members were patients with terminal cancer receiving home service.
We obtained 306 responses (response rate, 81%). Factor analysis resulted in 29 items and 8 factors: Burden of Care, Concerns about Home Care Doctor, Balance of Work and Care, Patient's Pain and Condition, Concerns about Visiting Nurse, Concerns about Home Care Service, Relationship between Family Caregivers and their Families, and Funeral Preparations. The cumulative rate of contribution was 71.8%. Cronbach coefficient α for the FDS was 0.73-0.75; the intraclass correlation coefficient in the test-retest examination was 0.75-0.85. Evidence for construct validity was confirmed by convergent and divergent validity. Concurrent validity was confirmed by significant correlations between identified factors and concurrent measures.
The validity and reliability of this new instrument were confirmed. This scale should help home care providers to assess and focus on family difficulties and provide individualized care for the family who cares for a patient with terminal cancer at home.
本研究旨在开发一种工具，以衡量家庭在临终关怀居家照护中照顾癌症患者的困难：家庭临终关怀困难量表（FDS）。
FDS 的草案源自试点访谈调查和文献综述。问卷发送给了 395 名丧亲的家庭照护者，他们的家庭成员是接受居家服务的终末期癌症患者。
我们收到了 306 份回复（回复率为 81%）。因子分析得出 29 个项目和 8 个因素：照顾负担、对居家照护医生的担忧、工作与照顾的平衡、患者的疼痛和状况、对访视护士的担忧、对居家照护服务的担忧、家庭照护者与他们的家庭之间的关系、以及葬礼准备。贡献的累积率为 71.8%。FDS 的克朗巴赫系数 α 为 0.73-0.75；测试-重测的组内相关系数为 0.75-0.85。通过收敛效度和区分效度证实了结构效度的证据。同时，通过与同时测量的因子之间的显著相关性证实了同时效度。
该新工具的有效性和可靠性得到了确认。该量表应有助于居家照护提供者评估和关注家庭的困难，并为在家中照顾终末期癌症患者的家庭提供个性化的照护。
