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患有天使综合征个体的同胞关系:一项比较研究。

Sibling relationships in individuals with Angelman syndrome: a comparative study.

作者信息

Love Victoria, Richters Lotte, Didden Robert, Korzilius Hubert, Machalicek Wendy

机构信息

Ossining High School, New York, USA.

出版信息

Dev Neurorehabil. 2012;15(2):84-90. doi: 10.3109/17518423.2011.637972. Epub 2012 Feb 1.

Abstract

OBJECTIVE

Investigating the impact of Angelman syndrome on the sibling relationship.

METHODS

This study explored differences in sibling relationships between children with a typically-developing sibling (n = 55) and children with a sibling with Angelman syndrome (n = 44). Sibling relationships were compared on four factors and 16 sub-scales of the Sibling Relationship Questionnaire-Revised.

RESULTS

Results showed significant differences in mean scores on each of the four factors (i.e. Warmth/Closeness, Conflict, Rivalry and Dominance/Nurturance) and most of the sub-scales. ANCOVAs showed that demographic variables (number of siblings, living in a two-parent vs single parent household, gender, participant's age, place of residence) did not influence significant differences in sibling relationships between the two groups.

CONCLUSION

Having a brother or sister with Angelman syndrome may influence the way in which the sibling perceives the sibling relationship. This may have important implications for family-centred intervention for this population.

摘要

目的

研究天使综合征对同胞关系的影响。

方法

本研究探讨了有发育正常同胞的儿童(n = 55)与有患天使综合征同胞的儿童(n = 44)在同胞关系上的差异。采用修订版同胞关系问卷的四个因素和16个分量表对同胞关系进行比较。

结果

结果显示,在四个因素(即温暖/亲密、冲突、竞争和主导/养育)以及大多数分量表的平均得分上存在显著差异。协方差分析表明,人口统计学变量(同胞数量、生活在双亲家庭还是单亲家庭、性别、参与者年龄、居住地)并未影响两组在同胞关系上的显著差异。

结论

有一个患天使综合征的兄弟姐妹可能会影响同胞对同胞关系的认知方式。这可能对该人群以家庭为中心的干预具有重要意义。

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