Chou Yueh-Ching, Lu Zxy-Yann Jane
Institute of Health and Welfare Policy, National Yang-Ming University, 155 Li-Nong St. Sec. 2, Peitou, Taipei, Taiwan.
J Intellect Dev Disabil. 2012 Mar;37(1):1-10. doi: 10.3109/13668250.2011.651615. Epub 2012 Feb 9.
The concerns of mothers and their experiences while providing help to their daughters with intellectual disability (ID) and considerable support needs during menstruation have rarely been addressed. This qualitative study explored mothers' experiences and perceptions of managing their daughters' menstruation.
Twelve Taiwanese mothers of 13 daughters with ID (1 mother had twins) were interviewed to explore their experiences of providing help to their daughters with high support needs during menstruation.
Support networks were limited and mothers developed their own strategies for managing their daughter's menstruation. Surgical hysterectomy or use of medication to cease or postpone menstrual bleeding was never considered by the mothers. The financial cost of menstrual pads and nappies was significant.
Both an appropriate allowance for families involved in the menstrual care of women with ID and access to appropriate support are needed. More information and educational programs need to be provided to relevant professionals and carers.
母亲们在帮助智障女儿时的担忧以及她们在女儿经期有大量支持需求时的经历很少被提及。这项定性研究探讨了母亲们管理女儿经期的经历和看法。
对12位台湾母亲（她们有13个智障女儿，其中1位母亲有一对双胞胎女儿）进行访谈，以探究她们在女儿经期有高支持需求时提供帮助的经历。
支持网络有限，母亲们制定了自己管理女儿经期的策略。母亲们从未考虑过通过手术切除子宫或使用药物来停止或推迟月经出血。卫生巾和尿布的经济成本很高。
对于参与智障女性经期护理的家庭，既需要给予适当补贴，也需要提供适当支持。需要向相关专业人员和护理人员提供更多信息和教育项目。
