Flores-Medina Maria Del Rosario, Valdez-Martinez Edith, Márquez-González Horacio
Medical Research Unit in Clinical Epidemiology, National Health Research Council, Mexican Institute of Social Security, Mexico City 06720, Mexico.
Department of Clinical Research, Children Hospital 'Federico Gomez', Mexico City 06720, Mexico.
Healthcare (Basel). 2022 Sep 4;10(9):1690. doi: 10.3390/healthcare10091690.
How primary carers, physicians, health education professionals, and others see or understand the subject of menstruation in women with intellectual disability (ID) is rooted in the socio-cultural context and in the socio-economic structures in which all of them live. The aim of this study was to explore how parents of young females with ID and special education professionals perceive and experience menstrual hygiene management, which coping strategies are applied; and what triggers the performance of a hysterectomy. A qualitative focus group study design was conducted with 69 parents and 11 special education professionals, in 14 schools and one Down syndrome clinic, in Mexico City. Data were analysed using the method of thematic analysis. The main concern of parents was how to cope with the underlying disease. They perceived menstrual bleeding positively. Their psychological distress had to do with the reproductive health of their daughters, with their wish to avoid pregnancy, and with their fear of death and leaving their daughters alone and helpless without them. None of them favoured hysterectomy. Medical indication of hysterectomy was identified as the trigger for its performance. There is an urgent need of policy development/review on best practices for hysterectomy in the females in question.
初级护理人员、医生、健康教育专业人员以及其他人员如何看待或理解智障（ID）女性的月经问题，这根植于他们所有人所处的社会文化背景和社会经济结构之中。本研究的目的是探讨智障年轻女性的父母和特殊教育专业人员如何看待和体验经期卫生管理，他们采用了哪些应对策略；以及是什么引发了子宫切除术的实施。在墨西哥城的14所学校和一家唐氏综合征诊所，对69名家长和11名特殊教育专业人员进行了定性焦点小组研究设计。使用主题分析法对数据进行了分析。家长们主要关心的是如何应对潜在疾病。他们对月经出血持积极看法。他们的心理困扰与女儿的生殖健康、避免怀孕的愿望以及对死亡的恐惧以及担心自己离世后女儿无人照顾且孤立无助有关。他们中没有人赞成子宫切除术。子宫切除术的医疗指征被确定为实施该手术的触发因素。迫切需要制定/审查针对上述女性子宫切除术最佳做法的政策。
