Department of Community Health Science, University of Calgary, Calgary, Alberta, Canada.
Can J Neurol Sci. 2012 Mar;39(2):206-12. doi: 10.1017/s031716710001324x.
Community-based studies can describe health status and related variables in people with Multiple Sclerosis (MS) while avoiding biases introduced by help-seeking in specific clinical settings.
To describe general health status, stress perceptions and life satisfaction in people with MS, in comparison to those with other types of disabilities.
MATERIALS & METHODS: The Participation and Activity Limitation Survey (PALS) was a post-censual survey conducted by Statistics Canada in association with the 2006 Canadian Census. PALS collected data from a random sample of n = 22,513 respondents identified as having health-related impairments. Frequencies and quartiles as well as mean values, along with associated 95% confidence intervals, were calculated in the analysis.
PALS identified 245 individuals with MS. Health status, both perceived and when weighted for societal preference, was markedly lower than that of other disabled groups. No differences in self-perceived stress were seen. People with MS reported lower levels of satisfaction with their health but slightly higher levels of satisfaction with their family and friends.
People with MS report lower levels of general health status and more impairment than those with other disabling conditions. Higher levels of satisfaction with friends and family may reflect psychological adaptation to the illness.
基于社区的研究可以描述多发性硬化症（MS）患者的健康状况和相关变量，同时避免在特定临床环境中寻求帮助所带来的偏见。
描述多发性硬化症患者的一般健康状况、压力认知和生活满意度，并与其他类型残疾患者进行比较。
参与和活动限制调查（PALS）是加拿大统计局在 2006 年加拿大人口普查中进行的一项事后调查。PALS 从 n = 22,513 名被认定为有健康相关障碍的随机样本中收集数据。在分析中计算了频率和四分位数以及平均值，以及相关的 95%置信区间。
PALS 确定了 245 名多发性硬化症患者。无论是否考虑到社会偏好，他们的健康状况，包括自我感知和加权感知，都明显低于其他残疾群体。自我感知的压力没有差异。多发性硬化症患者报告的健康满意度较低，但对家庭和朋友的满意度略高。
多发性硬化症患者报告的总体健康状况水平较低，功能障碍程度比其他残疾患者更严重。对朋友和家人更高的满意度可能反映了对疾病的心理适应。
