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患有多种慢性长期疾病患者的疾病表现:定性研究。

Illness representations in patients with multimorbid long-term conditions: qualitative study.

机构信息

NIHR School for Primary Care Research, Manchester Academic Health Science Centre, University of Manchester, Manchester M13 9PL, UK.

出版信息

Psychol Health. 2012;27(10):1211-26. doi: 10.1080/08870446.2012.662973. Epub 2012 Mar 5.

Abstract

Most research on illness representations explores how patients view single conditions, but many patients report more than one long-term condition (known as multimorbidity). It is not known how multimorbidity impacts on patient illness representations. This exploratory qualitative study examined patients' representations of multimorbid long-term conditions and sought to assess how models of illness representation might need modification in the presence of multimorbidity. We explored two major issues: (1) the impact of multimorbidity on patient representations of their individual conditions and (2) the representation of multimorbidity itself. Twenty eight adults with at least two long-term conditions (mean of 4) were interviewed. The presence of multimorbidity impacted on patient illness representations in relation to the dimensions of identity, perceived cause, coherence and consequences. Representations of multimorbidity itself concerned representations of the burden of medication and perceived priorities among conditions and synergies and antagonisms between conditions and their management. The results have implications for the measurement of multimorbidity (through scales such as the Illness Perception Questionnaire) and the use of illness representations in the design and delivery of interventions to improve health behaviour and outcomes of patients with multiple long-term conditions.

摘要

大多数关于疾病认知的研究都探讨了患者如何看待单一疾病,但许多患者报告患有多种长期疾病(称为共病)。目前尚不清楚共病对患者疾病认知的影响。这项探索性的定性研究检查了患者对多种共病长期疾病的认知,并试图评估在存在共病的情况下,疾病认知模型可能需要如何修改。我们探讨了两个主要问题:(1)共病对患者对其个体疾病认知的影响;(2)共病本身的认知。对 28 名至少患有两种长期疾病(平均 4 种)的成年人进行了访谈。共病的存在影响了患者对其个体疾病认知的身份、感知病因、连贯性和后果等方面。对共病本身的认知则涉及对药物负担和对疾病之间的优先级以及协同作用和拮抗作用的认知。研究结果对共病的测量(如通过疾病认知问卷等量表)以及在设计和实施干预措施以改善患有多种长期疾病的患者的健康行为和结果方面的疾病认知的使用都具有启示意义。

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