Tahirović Elnur, Begić Hidajeta, Tahirović Husref, Varni James W
University of Sarajevo, Sarajevo University Clinical Center, Heart Center, Sarajevo, Bosnia and Herzegovina.
Coll Antropol. 2011 Dec;35(4):1285-90.
The aim of this study was to assess the quality of life children after cardiac surgery for congenital heart disease (CHD) and to compare these results with healthy children. To assess the quality of life children after surgery for CHD we performed a cross-sectional study of 114 patients who were patients at the Department of Paediatrics in Tuzla, between the ages of 2 and 18 years, of both sexes, and with one of their parents. We used the "PedsQL 4.0 Generic Core Scales", with both child self-report and parent proxy-reports. By self assessment, the PedsQL total scores for quality of life were statistically significantly different between children after cardiac surgery for ages 13 to 18 years and healthy children, while by parent report PedsQL total scores were statistically significantly different between children after cardiac surgery for ages 5 to 7 years and healthy children. By self assessment, children after cardiac surgery for ages from 5 to 7 and 13 to 18 years reported that they have a statistically significantly lower quality of life in the segment school functioning compared to the healthy children. By parental assessment, children after cardiac surgery for ages 2 to 4, 5 to 7 and 8 to 12 years have a statistically significantly lower quality of life in the segments of physical and psychosocial health, emotional, social and school functioning. The results of our study indicate that children after cardiac surgery for CHD by self and parent assessment have a lower quality of life than healthy children.
本研究的目的是评估先天性心脏病（CHD）心脏手术后儿童的生活质量，并将这些结果与健康儿童进行比较。为了评估CHD手术后儿童的生活质量，我们对图兹拉儿科部的114名患者进行了横断面研究，这些患者年龄在2至18岁之间，男女皆有，且有一位家长陪同。我们使用了“儿童生活质量量表4.0通用核心量表”，包括儿童自评和家长代理报告。通过自我评估，13至18岁接受心脏手术的儿童与健康儿童在生活质量的儿童生活质量量表总分上存在统计学显著差异，而通过家长报告，5至7岁接受心脏手术的儿童与健康儿童在儿童生活质量量表总分上存在统计学显著差异。通过自我评估，5至7岁和13至18岁接受心脏手术的儿童报告称，与健康儿童相比，他们在学校功能方面的生活质量在统计学上显著较低。通过家长评估，2至4岁、5至7岁和8至12岁接受心脏手术的儿童在身体和心理社会健康、情感、社交和学校功能方面的生活质量在统计学上显著较低。我们的研究结果表明，接受CHD心脏手术的儿童通过自我和家长评估，其生活质量低于健康儿童。
