Hutchison Cathy, Morrison Audrey, Rice Ann Marie, Tait Gemma, Harden Sharon
The Beaston West of Scotland Cancer Center, Glasgow, Scotland.
Int J Palliat Nurs. 2012 Feb;18(2):61-8. doi: 10.12968/ijpn.2012.18.2.61.
Various guidelines have highlighted the importance of patients being given information on malignant spinal cord compression (MSCC), both when diagnosed with the condition and as a tool to aid early detection.
To determine patient and staff views on the provision of MSCC information to patients with a diagnosis of or considered to be at high risk of developing MSCC.
Patients with MSCC admitted to a large regional cancer centre in Scotland over a 6-month period were interviewed. Staff were also surveyed using similar questions.
Fifty-six patients and fifty staff were recruited. Only 4% of staff reported giving any written information about MSCC to patients with a confirmed diagnosis, although 20% of patients said they received it and 77% wanted it. A total of 54% of staff reported gaving prophylactic information about MSCC to patients, although the majority of the patients (86%) said they would have wanted this information. Patients generally did not access additional information about MSCC and were dependent on the limited amount provided by the health-care team.
Health professionals need to ensure that patients get the information they want, which will allow them to recognize MSCC symptoms early for improved treatment outcomes or to better adapt to a diagnosis.
各种指南都强调了在患者被诊断出患有恶性脊髓压迫症（MSCC）时以及作为辅助早期检测的工具向其提供相关信息的重要性。
确定患者和工作人员对于向被诊断为患有或被认为有患MSCC高风险的患者提供MSCC信息的看法。
对在6个月期间入住苏格兰一家大型地区癌症中心的MSCC患者进行了访谈。还使用类似问题对工作人员进行了调查。
招募了56名患者和50名工作人员。只有4%的工作人员报告向确诊患者提供了任何有关MSCC的书面信息，尽管20%的患者表示他们收到了，77%的患者希望收到。共有54%的工作人员报告向患者提供了有关MSCC的预防性信息，尽管大多数患者（86%）表示他们希望获得此信息。患者通常无法获取有关MSCC的更多信息，并且依赖于医疗团队提供的有限信息。
卫生专业人员需要确保患者获得他们想要的信息，这将使他们能够早期识别MSCC症状以改善治疗效果或更好地适应诊断。
