Cross Russell, Steury Rachel, Randall Amy, Fuska Mary, Sable Craig
Division of Cardiology, Children's National Medical Center, 111 Michigan Avenue, NW, Washington, DC, USA.
Future Cardiol. 2012 Mar;8(2):227-35. doi: 10.2217/fca.12.9.
Strategies to reduce interstage morbidity and mortality for patients with single ventricle following stage I palliation include, standardized care protocols, focused high-risk outpatient clinics, dedicated teams that focus on the unique needs of these fragile patients and use of home surveillance monitoring. Use of telemedicine devices for home monitoring has been shown to improve outcomes in adults. These devices allow for a more automated approach to home monitoring that have many advantages. We describe our program that utilizes a web-based telemedicine device to capture and transmit data from the homes of our patients during the interstage period. Our early data suggest that home telemedicine is feasible, provides a more systematic data review and analysis and supports the assertion that patients using home surveillance have significantly better nutritional status than those not using home monitoring.
降低一期姑息治疗后单心室患者阶段间发病率和死亡率的策略包括标准化护理方案、专注于高危门诊、致力于满足这些脆弱患者独特需求的专业团队以及采用家庭监测。使用远程医疗设备进行家庭监测已被证明可改善成人患者的治疗效果。这些设备实现了更自动化的家庭监测方法，具有诸多优势。我们介绍了我们的项目，该项目利用基于网络的远程医疗设备在阶段间期间从患者家中采集和传输数据。我们的早期数据表明，家庭远程医疗是可行的，能提供更系统的数据审查和分析，并支持这样的观点：使用家庭监测的患者营养状况明显优于未使用家庭监测的患者。
