Simon Tamara D, Mahant Sanjay, Cohen Eyal
Department of Pediatrics, Division of Hospital Medicine, University of Washington and Seattle Children's Hospital, Seattle, Washington, USA.
Curr Probl Pediatr Adolesc Health Care. 2012 May;42(5):113-9. doi: 10.1016/j.cppeds.2012.01.002.
Children with medical complexity, regardless of underlying diagnoses, share similar functional and resource use consequences, including: intensive service needs, reliance on technology, polypharmacy, and/or home care or congregate care to maintain a basic quality of life, high health resource utilization, and, an elevated need for care coordination. The emerging field of complex care is focused on the holistic medical care of these children, which requires both broad general pediatrics skills and specific expertise in care coordination and communication with patients, families, and other medical and non-medical care providers. Many pediatric hospitalists have developed an interest in care coordination for CMC, and pediatric hospitalists are in an ideal location to embrace complex care. As a result of these factors, complex care has emerged as a field with many pediatric hospitalists at the helm, in arenas ranging from clinical care of these patients, research into their care, and education of future providers. The objective of this section of the review article is to outline the past, present, and possible future of children with medical complexity within several arenas in the field of pediatric hospital medicine, including practice management, clinical care, research, education, and quality improvement.
患有复杂疾病的儿童,无论其潜在诊断如何,都有相似的功能和资源使用后果,包括:密集的服务需求、对技术的依赖、多种药物治疗,和/或需要家庭护理或集体护理以维持基本生活质量、高医疗资源利用率,以及对护理协调的更高需求。新兴的复杂护理领域专注于对这些儿童的整体医疗护理,这既需要广泛的普通儿科学技能,也需要在护理协调以及与患者、家庭和其他医疗及非医疗护理提供者沟通方面的特定专业知识。许多儿科住院医师对患有复杂疾病儿童的护理协调产生了兴趣,并且儿科住院医师处于接受复杂护理的理想位置。由于这些因素,复杂护理已成为一个由许多儿科住院医师主导的领域,涵盖从这些患者的临床护理、对其护理的研究,到对未来医疗服务提供者的教育等多个领域。这篇综述文章本节的目的是概述儿科医院医学领域几个方面中患有复杂疾病儿童的过去、现在和可能的未来,包括实践管理、临床护理、研究、教育和质量改进。