Fetal Cardiology Center Type C, Department for Diagnosis and Prevention of Congenital Malformations, Medical University of Lodz and Polish Mother's Memorial Hospital, Lodz, Poland.
Prenat Diagn. 2012 May;32(5):456-60. doi: 10.1002/pd.3838. Epub 2012 Apr 12.
We describe the National Registry for Fetal Cardiac Pathology, a program under the Polish Ministry of Health aimed at improving the prenatal diagnosis, care, and management of congenital heart disease (CHD).
An online database was created to prospectively record diagnosis, prenatal care, delivery, follow-up, and still images and video for fetuses with CHD. A certification program in fetal cardiac ultrasound was also implemented. Optimal screening and referral centers were identified by number of fetuses entered in the Registry yearly by each center.
From 2004 to 2009, 2910 fetuses with CHD were registered (2473 structural, 437 functional anomalies). The most common reasons for referral for fetal echocardiography were abnormal four-chamber view (56.0%) and extra-cardiac anomalies (8.2% ), while the most common diagnoses were atrioventricular septal defects (10.2%) and hypoplastic left heart syndrome (9.7%). Prenatal diagnosis increased yearly, from 10.0% of neonatal diagnoses in 2003 to 38.0% in 2008.
From inception of the registry up to 2009 there has been a fourfold increase in the number of neonates referred for cardiac surgery in whom the condition was prenatally diagnosed. Equally important achievements include the establishment of a certification program for fetal echocardiography and the organization of prenatal and neonatal management.
我们描述了胎儿心脏病理学国家注册中心，这是波兰卫生部旨在改善先天性心脏病（CHD）产前诊断、护理和管理的一个项目。
创建了一个在线数据库，用于前瞻性记录诊断、产前护理、分娩、随访以及患有 CHD 的胎儿的静态图像和视频。还实施了胎儿心脏超声认证计划。通过每个中心每年在注册中心登记的胎儿数量来确定最佳筛查和转诊中心。
2004 年至 2009 年，共有 2910 例患有 CHD 的胎儿被登记（2473 例结构性畸形，437 例功能性异常）。转诊进行胎儿超声心动图检查的最常见原因是四腔心切面异常（56.0%）和心脏外异常（8.2%），而最常见的诊断是房室间隔缺损（10.2%）和左心发育不良综合征（9.7%）。产前诊断逐年增加，从 2003 年新生儿诊断的 10.0%增加到 2008 年的 38.0%。
自登记册成立至 2009 年，接受心脏手术的新生儿数量增加了四倍，其中有 38.0%的患儿在产前得到了诊断。同样重要的成就是建立了胎儿超声心动图认证计划和产前及新生儿管理组织。
