Haisfield-Wolfe Mary Ellen, McGuire Deborah B, Krumm Sharon
Acute and Chronic Care Department, Johns Hopkins University, Baltimore, MD, USA.
Oncol Nurs Forum. 2012 May 1;39(3):E249-57. doi: 10.1188/12.ONF.E249-E257.
PURPOSE/OBJECTIVES: To describe coping among patients with laryngeal and oropharyngeal cancer during definitive radiation with or without chemotherapy.
Qualitative content analysis conducted within a larger study.
Two radiation oncology outpatient clinics in Baltimore, MD.
21 patients with oropharyngeal or laryngeal cancer.
Interviews with open-ended questions were conducted during treatment. Questions covered topics such as coping during treatment, treatment-related issues, and resources.
Coping, treatment, and coping resources.
Patients' self-assessments suggested they were coping or that coping was rough or upsetting. Issues that required coping varied over four time points. Physical side effects were problematic during and one month after treatment completion. Patients used coping to manage the uncertainties of physical and psychological aspects of their experience. Family and friend support was a common coping strategy used by patients, with the intensity of side effects corresponding with the support provided across time points.
Findings confirm previous research, but also provide new information about ways in which patients with head and neck cancer cope with their illness experience. Emergent themes provide insight into patients' feelings, issues, and assistance received with coping.
Patients with head and neck cancer need education on the amount and severity of side effects and should be appraised of potential difficulties with scheduling, driving, and other logistic issues. Patients also should be informed of helpful types of support and coping strategies. Additional research is needed to expand the findings related to patients' coping with treatment and to explore the experiences of family and friends who provide social support.
目的/目标：描述喉癌和口咽癌患者在接受确定性放疗（无论是否联合化疗）期间的应对方式。
在一项更大规模的研究中进行定性内容分析。
马里兰州巴尔的摩市的两家放射肿瘤门诊。
21名头颈部或喉癌患者。
在治疗期间进行开放式问题访谈。问题涵盖治疗期间的应对方式、与治疗相关的问题以及资源等主题。
应对方式、治疗以及应对资源。
患者的自我评估表明他们正在应对，或者应对过程艰难或令人苦恼。需要应对的问题在四个时间点有所不同。身体副作用在治疗期间及治疗结束后一个月较为突出。患者运用应对方式来处理自身经历中身体和心理方面的不确定性。家人和朋友的支持是患者常用的应对策略，副作用的严重程度与各时间点所获得的支持程度相对应。
研究结果证实了先前的研究，但也提供了有关头颈癌患者应对疾病经历方式的新信息。新出现的主题为了解患者的感受、问题以及应对过程中获得的帮助提供了见解。
头颈癌患者需要了解副作用的数量和严重程度，并应知晓在日程安排、驾驶及其他后勤问题方面可能存在的困难。还应告知患者有益的支持类型和应对策略。需要进一步开展研究以扩展与患者应对治疗相关的研究结果，并探索提供社会支持的家人和朋友的经历。
