Larsson Maria, Hedelin Birgitta, Athlin Elsy
Department of Nursing, Karlstad University, SE-651 88 Karlstad, Sweden.
Eur J Oncol Nurs. 2007 Feb;11(1):49-59. doi: 10.1016/j.ejon.2006.04.033. Epub 2006 Dec 20.
Patients with head and neck cancer have complex long-lasting physical and psychosocial needs due to illness and treatment, and studies have shown deficiencies concerning support in these respects. The purpose of this study was to describe how head and neck cancer patients with eating problems conceived the significance of a supportive nursing care clinic before, during and after completion of radiotherapy. Thematic interviews were carried out in an open dialogue with 12 patients treated with radiotherapy for head and neck cancer. The phenomenologischer method was used in the analyses. The findings showed that the nurse clinic could meet head and neck cancer patients' needs of safety and security, which was especially important before and after completion of treatment when no other regular contacts in the health care system existed. The significance of the nurse clinic varied depending on where in the trajectory the patients were, what needs and problems they experienced, and how severe these were experienced by the individual patient. The supportive nursing care clinic could meet these patients' needs of knowledge, care and support both concerning practical measures related to the disease and its treatment, and emotional needs. This way of organising the care can contribute to these patients' health and wellbeing.
由于疾病和治疗,头颈癌患者有着复杂且持久的身体和心理社会需求,并且研究表明在这些方面的支持存在不足。本研究的目的是描述有进食问题的头颈癌患者在放疗前、放疗期间及放疗结束后如何看待支持性护理诊所的重要性。对12名头颈癌放疗患者进行了开放式对话的主题访谈。分析采用现象学方法。研究结果表明,护士诊所能够满足头颈癌患者对安全保障的需求,这在治疗结束前后尤为重要,因为那时医疗系统中不存在其他常规联系。护士诊所的重要性因患者处于病程的哪个阶段、他们经历了哪些需求和问题以及个体患者对这些需求和问题的感受程度而异。支持性护理诊所能够满足这些患者在与疾病及其治疗相关的实际措施以及情感需求方面的知识、护理和支持需求。这种组织护理的方式有助于这些患者的健康和福祉。