Department of Communication Studies, Bloomsburg University, Bloomsburg, PA 17815, USA.
Health Commun. 2013;28(2):159-69. doi: 10.1080/10410236.2012.666712. Epub 2012 Apr 30.
Revealing a hidden, chronic illness is a risky and vulnerable act. Ill individuals often remain socially stigmatized, and those who live with invisible illness must legitimize their ill identity since they infrequently look sick. For individuals with inflammatory bowel disease (IBD), disclosing one's illness carries unique challenges because of the grotesque and taboo nature of the disease. To this end, the bathroom or "water closet" is more than a functional place-it is a space to hide one's ill identity. For many, the point of departure from safety to vulnerability occurs when there is a desire to disclose. In this descriptive essay, revelation of an invisible illness, IBD, and disclosure to others are explored as embodied and situated communication. Through performance narrative, the author shares stories of her disclosive moments to inform others about IBD, explores how the water closet can be a metaphoric boundary, examines various strategies used in revealing hidden illness, and offers possible implications for IBD disclosure to the self and relationships with others.
揭示隐藏的、慢性疾病是一种冒险和脆弱的行为。患者通常仍然受到社会的污名化,而那些患有隐形疾病的人必须使他们的病患身份合法化,因为他们很少看起来有病。对于患有炎症性肠病 (IBD) 的人来说,由于疾病的怪诞和禁忌性质,披露自己的病情带来了独特的挑战。为此,浴室或“水厕”不仅仅是一个功能性的地方——它是一个隐藏病患身份的空间。对于许多人来说,当他们想要披露病情时,就会从安全状态转变为脆弱状态。在这篇描述性文章中,将探讨作为体现和情境交际的隐形疾病、IBD 以及向他人披露病情的行为。通过表演叙事,作者分享了她披露病情的时刻,让其他人了解 IBD,探讨了水厕如何成为一个隐喻性的边界,检查了在揭示隐藏疾病时使用的各种策略,并为向自己和与他人的关系披露 IBD 提供了可能的影响。