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炎症性肠病中的既定耻辱感:一项意大利现象学研究。

Enacted Stigma in Inflammatory Bowel Disease: An Italian Phenomenological Study.

作者信息

Simeone Silvio, Mercuri Caterina, Cosco Cristina, Bosco Vincenzo, Pagliuso Caterina, Doldo Patrizia

机构信息

Department of Experimental and Clinical Medicine, Magna Graecia University of Catanzaro, 88100 Catanzaro, Italy.

出版信息

Healthcare (Basel). 2023 Feb 7;11(4):474. doi: 10.3390/healthcare11040474.

Abstract

Inflammatory bowel disease (IBD) is a chronic disease of the gastrointestinal tract that has a profound impact on the quality of life of those afflicted with it. The scientific literature shows how the quality of life of people with IBD influences and is influenced by the clinical manifestations of the disease. Strongly connected with excretory functions, which have always been taboo in society, these clinical manifestations can lead to stigmatizing behaviours. The purpose of this study was to understand the lived experiences of the enacted stigma of people with IBD through Cohen's phenomenological method. Two main themes (stigma in the workplace and stigma in social life) and one subtheme (stigma in love life) emerged from the data analysis. The data analysis revealed that stigma is associated with a multitude of negative health outcomes for the people targeted by it and can add to the already complex physical, psychological and social burdens endured by people with IBD. Having a better understanding of the stigma attached to IBD will facilitate the development of care and training interventions that can improve the quality of life of people suffering from IBD.

摘要

炎症性肠病(IBD)是一种胃肠道的慢性疾病,对患者的生活质量有深远影响。科学文献表明,IBD患者的生活质量如何影响该疾病的临床表现以及如何受到其影响。这些临床表现与排泄功能密切相关,而排泄功能在社会中一直是禁忌话题,可能导致污名化行为。本研究的目的是通过科恩的现象学方法来了解IBD患者所遭受的污名化的实际经历。数据分析得出了两个主要主题(职场中的污名和社会生活中的污名)以及一个子主题(恋爱生活中的污名)。数据分析显示,污名与受其影响的人群的多种负面健康结果相关,并且会加重IBD患者已经承受的复杂的身体、心理和社会负担。更好地理解与IBD相关的污名将有助于开发护理和培训干预措施,从而提高IBD患者的生活质量。

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