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关键社会理论方法对基因组偶然发现的披露。

Critical social theory approach to disclosure of genomic incidental findings.

机构信息

Rush University, College of Nursing, Chicago, IL 60612, USA.

出版信息

Nurs Ethics. 2012 Nov;19(6):819-28. doi: 10.1177/0969733011433924. Epub 2012 May 4.

Abstract

Technology has expanded genomic research and the complexity of extracted gene-related information. Health-related genomic incidental findings pose new dilemmas for nurse researchers regarding the ethical application of disclosure to participants. Consequently, informed consent specific to incidental findings is recommended. Critical Social Theory is used as a guide in recognition of the changing meaning of informed consent and to serve as a framework to inform nursing of the ethical application of disclosure consent in genomic nursing research practices.

摘要

科技的进步扩展了基因组研究和相关基因信息的复杂性。与健康相关的基因组偶然发现给护士研究人员带来了新的困境,即如何在伦理上对参与者进行披露。因此,建议针对偶然发现进行特定的知情同意。批判社会理论被用作指导,以认识知情同意的含义变化,并作为一个框架,为护理人员在基因组护理研究实践中披露同意的伦理应用提供信息。

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