Russo Emanuela, Trevisi E, Zulian F, Battaglia M A, Viel D, Facchin D, Chiusso A, Martinuzzi A
E Medea Scientific Institute, Conegliano Research Centre, Via Costa Alta 37, 31015 Conegliano, Italy.
ScientificWorldJournal. 2012;2012:841375. doi: 10.1100/2012/841375. Epub 2012 May 3.
Juvenile Idiopathic Arthritis (JIA) is the most common chronic pediatric rheumatic disease. It is recognized that only reliance on clinical signs of disease outcome is inadequate for understanding the impact of illness and its treatment on child's life and functioning. There is a need for a multidisciplinary and holistic approach to children with arthritis which considers both physical and emotional functioning. This study investigated the psychosocial functioning of children and adolescent with JIA and the disease-related changes in their family.
The sample consisted of 33 hospitalized patients, aged 6-16 years. Both parents and the children were given a number of questionnaire to fill out. Clinical information was extracted from the interviews.
Self-reported psychological functioning (depression, anxiety, and behavior) was not different from the normal population; however significant psychological suffering was detected by the clinical interview.
Children and adolescents with JIA do not show overt psychopathology by structured assessment; nevertheless a more clinically oriented holistic approach confirms JIA as a disrupting event causing relevant changes in the quality of life of the affected families.
青少年特发性关节炎(JIA)是最常见的儿童慢性风湿性疾病。人们认识到,仅依靠疾病结果的临床体征不足以了解疾病及其治疗对儿童生活和功能的影响。对于患有关节炎的儿童,需要一种多学科的整体方法,既要考虑身体功能,也要考虑情感功能。本研究调查了患JIA的儿童和青少年的心理社会功能及其家庭中与疾病相关的变化。
样本包括33名6至16岁的住院患者。父母和孩子都被给予了一些问卷来填写。临床信息从访谈中提取。
自我报告的心理功能(抑郁、焦虑和行为)与正常人群无异;然而,临床访谈发现了明显的心理痛苦。
通过结构化评估,患JIA的儿童和青少年没有表现出明显的精神病理学症状;然而,一种更以临床为导向的整体方法证实JIA是一个干扰事件,会导致受影响家庭的生活质量发生相关变化。