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儿童青少年特发性关节炎患儿及其家长的韧性因素:儿童和家长心理灵活性的作用。

Resilience Factors in Children with Juvenile Idiopathic Arthritis and Their Parents: The Role of Child and Parent Psychological Flexibility.

机构信息

Department of Experimental-Clinical and Health Psychology, Ghent University, Ghent, Belgium.

Institute for Health and Behaviour, INSIDE, University of Luxembourg, Maison des Sciences Humaines, Esch-sur-Alzette, Luxembourg.

出版信息

Pain Med. 2019 Jun 1;20(6):1120-1131. doi: 10.1093/pm/pny181.

Abstract

OBJECTIVE

Chronic pain is central to juvenile idiopathic arthritis (JIA) and is predictive of impaired functioning. Whereas most work has focused on identifying psychosocial risk factors for maladaptive outcomes, we explored the idea that child and parental psychological flexibility (PF) represent resilience factors for adaptive functioning of the child. We also explored differences between general vs pain-specific PF in contributing to child outcomes.

METHODS

Children with JIA (age eight to 18 years) and (one of) their parents were recruited at the Department of Pediatric Rheumatology at the Ghent University Hospital in Belgium. They completed questionnaires assessing child and parent general and pain-specific PF and child psychosocial and emotional functioning and disability.

RESULTS

The final sample consisted of 59 children and 48 parents. Multiple regression analyses revealed that child PF contributed to better psychosocial functioning and less negative affect. Child pain acceptance contributed to better psychosocial functioning, lower levels of disability, and lower negative affect, and also buffered the negative influence of pain intensity on disability. Bootstrap mediation analyses demonstrated that parental (general) PF indirectly contributed to child psychosocial functioning and affect via the child's (general) PF. Parent pain-specific PF was indirectly linked to child psychosocial functioning, disability, and negative affect via child pain acceptance.

CONCLUSIONS

Our findings indicate that child and parental PF are resilience factors and that pain acceptance buffers the negative impact of pain intensity. Implications for psychosocial interventions that target (pain-specific) PF in children and parents are discussed.

摘要

目的

慢性疼痛是幼年特发性关节炎(JIA)的核心问题,且可预测功能障碍。尽管大多数研究都集中在确定适应不良结果的心理社会风险因素上,但我们探讨了这样一种观点,即儿童和父母的心理灵活性(PF)是儿童适应功能的恢复因素。我们还探讨了一般 PF 和疼痛特异性 PF 对儿童结果的贡献之间的差异。

方法

在比利时根特大学医院儿科风湿病科招募了 JIA 患儿(8 至 18 岁)及其(一位)父母。他们完成了评估儿童和父母一般和疼痛特异性 PF 以及儿童心理社会和情绪功能及残疾的问卷。

结果

最终样本包括 59 名儿童和 48 名父母。多元回归分析显示,儿童 PF 有助于更好的心理社会功能和较少的负面情绪。儿童疼痛接受有助于更好的心理社会功能、较低的残疾水平和较低的负面情绪,并且还缓冲了疼痛强度对残疾的负面影响。Bootstrap 中介分析表明,父母(一般)PF 通过儿童(一般)PF 间接地影响儿童的心理社会功能和情感。父母的疼痛特异性 PF 通过儿童的疼痛接受与儿童的心理社会功能、残疾和负面情绪间接相关。

结论

我们的研究结果表明,儿童和父母的 PF 是恢复因素,疼痛接受缓冲了疼痛强度的负面影响。讨论了针对儿童和父母的(疼痛特异性)PF 的心理社会干预的意义。

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