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工作坊报告:在加拿大开发小儿炎症性肠病网络和数据平台。

Workshop report: developing a pediatric inflammatory bowel diseases network and data platform in Canada.

机构信息

Canadian Institutes of Health Research, Ottawa, Ontario, Canada.

出版信息

J Pediatr Gastroenterol Nutr. 2012 Aug;55(2):125-30. doi: 10.1097/MPG.0b013e3182604f3c.

Abstract

The purpose of the workshop was to receive input from the Canadian pediatric inflammatory bowel diseases research community to develop a research funding opportunity for a Canadian pediatric inflammatory bowel diseases network and data platform supported by the Canadian Institutes for Health Research, in partnership with the Foundation for Children with Intestinal and Liver Disorders. Leaders from across the country came together, with the objectives of identifying the scientific goals for a Canadian pediatric inflammatory bowel disease network, the required infrastructure, and an appropriate governance structure needed to achieve such a network and data platform, as well as other elements needed to ensure the successful implementation of a network.

摘要

本次研讨会的目的是从加拿大儿科炎症性肠病研究界获取意见,为加拿大儿科炎症性肠病网络和由加拿大卫生研究院与儿童肠病和肝病基金会合作支持的数据平台开发一个研究资金机会。来自全国各地的领导人齐聚一堂,旨在确定加拿大儿科炎症性肠病网络的科学目标、所需的基础设施以及实现该网络和数据平台所需的适当治理结构,以及确保网络成功实施所需的其他要素。

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