Centre of Genomics and Policy, Department of Human Genetics, Faculty of Medicine, McGill University, 740 Dr Penfield Avenue, Suite 5200, Montreal, Quebec, H3A 0G1, Canada.
Genome Biol. 2012 May 29;13(5):158. doi: 10.1186/gb-2012-13-5-158.
Biobanks are adopting various modes of public engagement to close the agency gap between participants and biobank builders. We propose a wiki-governance model for biobanks that harnesses Web 2.0, and which gives citizens the ability to collaborate in biobank governance and policymaking.
生物银行正在采取各种公众参与模式来缩小参与者和生物库建设者之间的代理差距。我们为生物库提出了一个维基治理模式,利用 Web 2.0 技术,使公民有能力参与生物库治理和决策制定。