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本文引用的文献

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"Frustrated with the whole system": a qualitative framework analysis of the issues faced by people accessing health services for chronic pain.“对整个系统感到沮丧”:对寻求慢性疼痛治疗服务的人群所面临问题的定性框架分析。
BMC Health Serv Res. 2022 Dec 31;22(1):1603. doi: 10.1186/s12913-022-08946-8.
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The ability of physiotherapists to identify psychosocial factors in patients with musculoskeletal pain: A scoping review.物理治疗师识别肌肉骨骼疼痛患者心理社会因素的能力:范围综述。
Musculoskeletal Care. 2023 Jun;21(2):502-515. doi: 10.1002/msc.1725. Epub 2022 Dec 23.
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The Impact of eHealth Interventions on the Improvement of Self-Care in Chronic Patients: An Overview of Systematic Reviews.电子健康干预对慢性病患者自我护理改善的影响:系统评价综述
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Shared decision making and physical therapy: What, when, how, and why?共同决策和物理治疗:是什么,何时,如何,为什么?
Braz J Phys Ther. 2022 Jan-Feb;26(1):100382. doi: 10.1016/j.bjpt.2021.100382. Epub 2022 Jan 1.
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A national survey of publicly funded chronic pain management services in Ireland.爱尔兰全国性的公共资助慢性疼痛管理服务调查。
Ir J Med Sci. 2022 Jun;191(3):1315-1323. doi: 10.1007/s11845-021-02673-5. Epub 2021 Jun 10.
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Barriers and enablers influencing healthcare professionals' adoption of a biopsychosocial approach to musculoskeletal pain: a systematic review and qualitative evidence synthesis.影响医疗保健专业人员采用生物心理社会方法治疗肌肉骨骼疼痛的障碍因素和促进因素:系统评价和定性证据综合。
Pain. 2021 Aug 1;162(8):2154-2185. doi: 10.1097/j.pain.0000000000002217.
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Living well with chronic pain: the role of pain-management programmes.与慢性疼痛和谐共处:疼痛管理项目的作用。
BJA Educ. 2018 Jan;18(1):3-7. doi: 10.1016/j.bjae.2017.09.001. Epub 2017 Nov 21.
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Self-management support for people with non-specific low back pain: A qualitative survey among physiotherapists and exercise therapists.非特异性下腰痛患者的自我管理支持:物理治疗师和运动治疗师的定性调查。
Musculoskelet Sci Pract. 2020 Dec;50:102269. doi: 10.1016/j.msksp.2020.102269. Epub 2020 Oct 6.
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Factors influencing autonomy supportive consultation: A realist review.影响自主支持型咨询的因素:一个现实主义的综述。
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10
A meta-analysis of self-determination theory-informed intervention studies in the health domain: effects on motivation, health behavior, physical, and psychological health.基于自我决定理论的健康领域干预研究的元分析:对动机、健康行为、生理和心理健康的影响。
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疼痛服务的亲身经历:爱尔兰医疗服务中服务使用者与服务提供者经历的比较

The Lived Experience of Pain Services: A Comparison of Service Users' and Service Providers' Experience of Irish Health Services.

作者信息

Sheridan Kate, MacNamara Aine, Whyte Enda, O'Connor Siobhan

机构信息

School of Health and Human Performance, Dublin City University, Dublin, Ireland.

出版信息

Pain Res Manag. 2025 Aug 3;2025:4608906. doi: 10.1155/prm/4608906. eCollection 2025.

DOI:10.1155/prm/4608906
PMID:40786592
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12335910/
Abstract

A supportive healthcare experience that implements a biopsychosocial model of care can empower a person with chronic pain to make informed decisions and engage in self-management behaviours. Despite the positive influence of supportive healthcare, little is known about the presence of healthcare support in under-resourced chronic pain services. This idiographic study explores the lived experience of service users and providers participating in chronic pain services with a specific focus on autonomy support and self-management skills. Semistructured interviews were conducted on service users ( = 7) self-reporting a diagnosis of chronic pain (pain > 3 months) and service providers ( = 5), defined as healthcare professionals with > 3 years of experience in clinical healthcare settings managing pain conditions. All interviews took place online (mean 47 ± 11 min). Interview transcripts were analysed using interpretative phenomenological analysis. Analyses generated four themes: 'biomedical model leads care'; 'lost in a system'; 'I need support' and 'the essentials of self-management'. Both service users and providers described regular experiences of invalidation and biomedical approaches to pain management. Long waitlists, a lack of multidisciplinary services, short appointment times and a lack of educational resources all impacted the development of self-management skills in service users. Despite clinical guidelines recommending a biopsychosocial model of care, the biomedical model remains the dominant approach in chronic pain management, reflecting a persistent gap between evidence and practice. Service users and providers desire access to multidisciplinary services that support a biopsychosocial model of care. Healthcare professionals cannot deliver what service users expect due to macro-, meso- and microlevel factors. Future research is needed to explore practical solutions to deliver pain services that optimise the development of self-management skills where existing infrastructure and resources negatively impact service delivery. Suggested approaches include enhancing autonomy-supportive communication by healthcare providers and ensuring early access to high-quality educational materials.

摘要

一种实施生物心理社会护理模式的支持性医疗体验,可以使慢性疼痛患者有能力做出明智的决策并参与自我管理行为。尽管支持性医疗有积极影响,但对于资源不足的慢性疼痛服务中医疗支持的存在情况却知之甚少。这项个案研究探讨了参与慢性疼痛服务的服务使用者和提供者的生活经历,特别关注自主性支持和自我管理技能。对自我报告诊断为慢性疼痛(疼痛超过3个月)的服务使用者(n = 7)和服务提供者(n = 5)进行了半结构化访谈,服务提供者被定义为在临床医疗环境中管理疼痛状况有超过3年经验的医疗专业人员。所有访谈均在线进行(平均47±11分钟)。使用解释性现象学分析对访谈记录进行了分析。分析产生了四个主题:“生物医学模式主导护理”;“在系统中迷失”;“我需要支持”和“自我管理的要素”。服务使用者和提供者都描述了疼痛管理中经常出现的无效化和生物医学方法的经历。长等候名单、缺乏多学科服务、预约时间短以及缺乏教育资源都影响了服务使用者自我管理技能的发展。尽管临床指南推荐生物心理社会护理模式,但生物医学模式仍然是慢性疼痛管理的主导方法,这反映了证据与实践之间持续存在的差距。服务使用者和提供者希望获得支持生物心理社会护理模式的多学科服务。由于宏观、中观和微观层面的因素,医疗专业人员无法提供服务使用者所期望的服务。需要未来的研究来探索切实可行的解决方案,以提供能够优化自我管理技能发展的疼痛服务,因为现有的基础设施和资源对服务提供产生了负面影响。建议的方法包括加强医疗提供者的自主性支持沟通,并确保尽早获得高质量的教育材料。