University of Southern California, Keck School of Medicine, Los Angeles, California, USA.
J Am Acad Dermatol. 2013 Jun;68(6):e163-8. doi: 10.1016/j.jaad.2012.04.016. Epub 2012 Jun 8.
Topical medications are a mainstay of psoriasis treatment. Many patients lack education about topicals. This may contribute to low adherence with long-term disease management.
We sought to describe educational needs concerning topical treatment for patients with psoriasis.
Patients' questions regarding topical therapy were collected from a National Psoriasis Foundation webcast on topical medications. The prebroadcast question responses and the postwebcast survey responses were categorized into common themes and ranked by frequency.
Thirty percent asked about side effects, with a major emphasis on topical steroids; 16% asked about proper use; and 11% asked about efficacy. Popular new and useful education concerned specific medication facts and information on medication (especially steroid) safety, the need for treatment adherence, and the variety of options available in topical form.
The study population consisted of online users expressing interest in the National Psoriasis Foundation educational material, not the general population of patients with psoriasis.
Patient needs can be better met by providing information regarding side effects, proper use, and efficacy of topical medications. Communication regarding treatment changes and adherence to the treatment regimen should also occur.
局部药物治疗是银屑病治疗的主要方法。许多患者缺乏局部药物治疗的相关知识。这可能导致患者无法长期坚持疾病管理。
我们旨在描述银屑病患者对局部治疗教育的需求。
我们从国家银屑病基金会（National Psoriasis Foundation）的一个关于局部药物治疗的网络广播中收集了患者关于局部治疗的问题。将预广播问题的回复和网络广播后的调查回复进行分类，并按照频率进行排序。
30%的患者询问了副作用问题，其中重点是局部皮质类固醇；16%的患者询问了正确使用方法；11%的患者询问了疗效。新出现的受欢迎的有用教育内容涉及特定药物的事实和药物（尤其是皮质类固醇）安全性信息、治疗依从性的必要性以及局部治疗的多种选择。
研究人群由对国家银屑病基金会教育材料感兴趣的在线用户组成，而不是银屑病患者的一般人群。
通过提供有关局部药物的副作用、正确使用方法和疗效的信息，可以更好地满足患者的需求。还应就治疗方案的调整和治疗方案的依从性进行沟通。
