Kaiser Permanente Center for Health Research-Hawaii, Honolulu, Hawaii 96817, USA.
Pediatrics. 2012 Jul;130(1):e183-90. doi: 10.1542/peds.2011-1786. Epub 2012 Jun 11.
To examine integrated personal health record (PHR) use patterns among parents of children with chronic disease and compare ratings of care experiences between integrated PHR users and nonusers.
A survey was mailed to 600 randomly selected parents of children with chronic disease ≤ 5 years old and enrolled at Group Health for ≥ 1 year. Respondents reported integrated PHR use in the past 12 months, types of services used, or reasons for nonuse. We measured parent ratings of care experiences by using Consumer Assessments of Healthcare Providers and Systems (CAHPS) composite measures: Attention to Growth and Development, Attention to Safety and Health, Getting Care Quickly, Getting Needed Care, Prescription Medications, and Care Coordination. We used multivariate logistic regression to test the association between integrated PHR use and each CAHPS composite measure dichotomized by using the top box score method.
Of 256 respondents (43% eligible response rate), 166 (65%) were integrated PHR users and 90 (35%) were nonusers. The top integrated PHR services used were viewing immunization records, viewing medical records, secured messaging, and scheduling appointments. The top reasons for not using the integrated PHR were "too busy," "forgot login/password," and "my child does not have health care needs." Adjusted logistic regression did not reveal any significant differences between users and nonusers.
Parents of children with chronic disease appear willing to use an integrated PHR to address health care needs for their child. Integrated PHR use was not associated with higher scores on CAHPS composite measures in this health plan.
考察慢性病患儿家长综合个人健康记录（PHR）的使用模式，并比较综合 PHR 用户与非用户的护理体验评分。
向参加 Group Health 计划且≥1 年、≤5 岁慢性病患儿的 600 名随机家长邮寄调查问卷。受访者报告过去 12 个月中综合 PHR 的使用情况、使用的服务类型或未使用的原因。我们使用医疗保健提供者和系统消费者评估（CAHPS）综合指标来衡量家长对护理体验的评价：关注生长发育、关注安全与健康、快速获得护理、获得所需护理、处方药和护理协调。我们使用多变量逻辑回归，使用顶部框评分方法对 CAHPS 综合指标进行二分法，检验综合 PHR 使用与每个 CAHPS 综合指标之间的关联。
在 256 名受访者中（43%符合条件的应答率），166 名（65%）是综合 PHR 用户，90 名（35%）是非用户。最常使用的综合 PHR 服务包括查看免疫记录、查看病历、安全消息传递和预约。不使用综合 PHR 的主要原因是“太忙”、“忘记登录/密码”和“我的孩子没有医疗保健需求”。调整后的逻辑回归未显示用户和非用户之间存在任何显著差异。
慢性病患儿的家长似乎愿意使用综合 PHR 来满足其子女的医疗保健需求。在这项健康计划中，综合 PHR 使用与 CAHPS 综合指标得分的提高无关。
