照顾者对注意缺陷多动障碍管理中个人健康记录的偏好
Caregiver Preferences Regarding Personal Health Records in the Management of ADHD.
作者信息
Ronis Sarah D, Baldwin Constance D, McIntosh Scott, McConnochie Kenneth, Szilagyi Peter G, Dolan James
机构信息
University of Rochester School of Medicine and Dentistry, Rochester, NY, USA
University of Rochester School of Medicine and Dentistry, Rochester, NY, USA.
出版信息
Clin Pediatr (Phila). 2015 Jul;54(8):765-74. doi: 10.1177/0009922814565883. Epub 2015 Jan 7.
OBJECTIVE
Personal health records (PHRs) may address the needs of children with attention deficit hyperactivity disorder. Among parents, we assessed acceptance, barriers, and intentions regarding use of PHR for their children with attention deficit hyperactivity disorder.
METHODS
Survey of parents from 3 practices in Rochester, NY. Stepwise logistic regression analysis explored factors predicting respondents' intentions for future use of PHR, accounting for care coordination needs, caregiver education, socioeconomic status, and satisfaction with providers.
RESULTS
Of 184 respondents, 23% had used the PHR for their child, 82% intended future use. No difference was observed between users and nonusers regarding gender, age, race, or education. Users were more likely than nonusers to reside in the suburbs (P = .03). Caregivers were more likely to plan future use of the PHR if they felt engaged as partners in their child's care (adjusted odds ratio = 2.3, 95% confidence interval = 1.2, 4.5).
CONCLUSIONS
Parents are enthusiastic about PHRs. Future work should focus on engaging them as members of the health care team.
目的
个人健康记录（PHR）可能满足注意力缺陷多动障碍（ADHD）儿童的需求。我们在家长中评估了对使用PHR来照顾其患有ADHD的孩子的接受度、障碍及意愿。
方法
对纽约州罗切斯特市3家医疗机构的家长进行调查。逐步逻辑回归分析探讨了预测受访者未来使用PHR意愿的因素，同时考虑了护理协调需求、照顾者教育程度、社会经济地位以及对医疗服务提供者的满意度。
结果
在184名受访者中，23%曾为其孩子使用过PHR，82%打算未来使用。在使用者和非使用者之间，在性别、年龄、种族或教育程度方面未观察到差异。使用者比非使用者更有可能居住在郊区（P = 0.03）。如果照顾者觉得自己作为孩子护理的合作伙伴参与其中，他们更有可能计划未来使用PHR（调整后的优势比 = 2.3，95%置信区间 = 1.2，4.5）。
结论
家长对PHR很感兴趣。未来的工作应着重让他们成为医疗团队的成员。
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