Suppr超能文献

患有严重慢性疲劳综合征的青少年能够完全康复。

Adolescents with severe chronic fatigue syndrome can make a full recovery.

作者信息

Burgess Mary, Chalder Trudie

机构信息

Chronic Fatigue Research and Treatment Unit, South London & Maudsley Trust, London, UK.

出版信息

BMJ Case Rep. 2011 May 10;2011:bcr0120113716. doi: 10.1136/bcr.01.2011.3716.

Abstract

The needs of children and adolescents severely affected by chronic fatigue syndrome, myalgic encephalomyelitis (CFS/ME) are currently inadequately addressed in the UK. Sadly, there are few specialists addressing the needs of these patients who are primarily bed-bound, wheelchair users or who can only leave home on an infrequent basis. Uncertainty about what to offer as well of a lack of funding may play a part. Action for Young people with ME (AYME) suggests that at least 350 severely affected children/adolescents are receiving little or inadequate care to help them overcome this debilitating illness. This case report illustrates how recovery can occur with pragmatic rehabilitation combined with a committed compassionate family based approach.

摘要

在英国,受慢性疲劳综合征、肌痛性脑脊髓炎(CFS/ME)严重影响的儿童和青少年的需求目前未得到充分满足。遗憾的是,几乎没有专家关注这些主要卧床、依赖轮椅或只能偶尔离家的患者的需求。提供何种治疗方法的不确定性以及资金短缺可能是其中的原因。“肌痛性脑脊髓炎青年行动组织”(AYME)指出,至少350名受严重影响的儿童/青少年正在接受很少或不充分的护理,以帮助他们战胜这种使人衰弱的疾病。本病例报告说明了务实的康复治疗与坚定的、富有同情心的家庭治疗方法相结合是如何实现康复的。

相似文献

1
Adolescents with severe chronic fatigue syndrome can make a full recovery.
BMJ Case Rep. 2011 May 10;2011:bcr0120113716. doi: 10.1136/bcr.01.2011.3716.
4
The utility of patient-reported outcome measures among patients with myalgic encephalomyelitis/chronic fatigue syndrome.
Qual Life Res. 2017 Apr;26(4):913-921. doi: 10.1007/s11136-016-1406-3. Epub 2016 Sep 6.
5
Home-based family focused rehabilitation for adolescents with severe Chronic Fatigue Syndrome.
Clin Child Psychol Psychiatry. 2019 Jan;24(1):19-28. doi: 10.1177/1359104518794764. Epub 2018 Aug 16.
6
Conceptual model for physical therapist management of chronic fatigue syndrome/myalgic encephalomyelitis.
Phys Ther. 2010 Apr;90(4):602-14. doi: 10.2522/ptj.20090047. Epub 2010 Feb 25.
8
Medically Documenting Disability in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Cases.
Front Pediatr. 2019 Jul 2;7:231. doi: 10.3389/fped.2019.00231. eCollection 2019.
10
Psychometric properties of the PROMIS Fatigue Short Form 7a among adults with myalgic encephalomyelitis/chronic fatigue syndrome.
Qual Life Res. 2019 Dec;28(12):3375-3384. doi: 10.1007/s11136-019-02289-4. Epub 2019 Sep 10.

本文引用的文献

2
Cognitive behaviour therapy for adolescents with chronic fatigue syndrome: randomised controlled trial.
BMJ. 2005 Jan 1;330(7481):14. doi: 10.1136/bmj.38301.587106.63. Epub 2004 Dec 7.
3
The Work and Social Adjustment Scale: a simple measure of impairment in functioning.
Br J Psychiatry. 2002 May;180:461-4. doi: 10.1192/bjp.180.5.461.
4
The course of severe chronic fatigue syndrome in childhood.
J R Soc Med. 2000 Mar;93(3):129-34. doi: 10.1177/014107680009300306.
5
Development of a fatigue scale.
J Psychosom Res. 1993;37(2):147-53. doi: 10.1016/0022-3999(93)90081-p.

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍。

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索

文档翻译

学术文献翻译模型,支持多种主流文档格式。

立即体验