Burgess Mary, Chalder Trudie
Chronic Fatigue Research and Treatment Unit, South London & Maudsley Trust, London, UK.
BMJ Case Rep. 2011 May 10;2011:bcr0120113716. doi: 10.1136/bcr.01.2011.3716.
The needs of children and adolescents severely affected by chronic fatigue syndrome, myalgic encephalomyelitis (CFS/ME) are currently inadequately addressed in the UK. Sadly, there are few specialists addressing the needs of these patients who are primarily bed-bound, wheelchair users or who can only leave home on an infrequent basis. Uncertainty about what to offer as well of a lack of funding may play a part. Action for Young people with ME (AYME) suggests that at least 350 severely affected children/adolescents are receiving little or inadequate care to help them overcome this debilitating illness. This case report illustrates how recovery can occur with pragmatic rehabilitation combined with a committed compassionate family based approach.
在英国,受慢性疲劳综合征、肌痛性脑脊髓炎(CFS/ME)严重影响的儿童和青少年的需求目前未得到充分满足。遗憾的是,几乎没有专家关注这些主要卧床、依赖轮椅或只能偶尔离家的患者的需求。提供何种治疗方法的不确定性以及资金短缺可能是其中的原因。“肌痛性脑脊髓炎青年行动组织”(AYME)指出,至少350名受严重影响的儿童/青少年正在接受很少或不充分的护理,以帮助他们战胜这种使人衰弱的疾病。本病例报告说明了务实的康复治疗与坚定的、富有同情心的家庭治疗方法相结合是如何实现康复的。