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同意行尿道下裂修复术的父母的决策冲突分析:100 对夫妇的单机构前瞻性研究。

Analysis of decisional conflict among parents who consent to hypospadias repair: single institution prospective study of 100 couples.

机构信息

Division of Urology, Hospital for Sick Children and University of Toronto, Toronto, Ontario, Canada.

出版信息

J Urol. 2012 Aug;188(2):571-5. doi: 10.1016/j.juro.2012.04.022. Epub 2012 Jun 15.

DOI:10.1016/j.juro.2012.04.022
PMID:22704113
Abstract

PURPOSE

Although obtaining informed consent for distal hypospadias repair is common practice, little is known about the uncertainty or conflict between consenting parents faced with this decision. We systematically evaluated decisional conflict between parents who elected to have their child undergo hypospadias surgery.

MATERIALS AND METHODS

A total of 100 couples who were counseled about treatment options agreed to participate. Using a validated questionnaire, the Decisional Conflict Scale, we prospectively collected data on decisional conflict demographics, preference for circumcision, education level and prior knowledge about hypospadias.

RESULTS

All parents elected surgical repair. Evidence of decisional conflict was encountered in 28% of participants (score less than 25 in 72%, 25 to 37.5 in 23.5%, greater than 37.5 in 4.5%). No statistically significant differences among parents were noted for total score (mean ± SD 16.1 ± 12 in mothers and 18.3 ± 12.6 in fathers) or subscales, except the informed subscale (mean ± SD 16.7 ± 14.3 in mothers and 21.1 ± 16.6 in fathers). Parental self-report of prior knowledge about hypospadias and preference for neonatal circumcision correlated with lower Decisional Conflict Scale scores (p = 0.02 and p <0.01, respectively). No statistical association was found between score and parental education level (p = 0.7) or expertise of the counselor (staff vs pediatric urology fellow, p = 0.4).

CONCLUSIONS

These data describe the level of decisional conflict in couples agreeing to proceed with hypospadias repair, with no evidence of significant discrepancy between them. The novel description of factors related to decreased decisional conflict might help focus efforts aimed at minimizing difficulties encountered during the decision making process.

摘要

目的

尽管获得对远端尿道下裂修复的知情同意是常见的做法,但对于面临这一决策的同意父母之间的不确定性或冲突却知之甚少。我们系统地评估了选择让孩子接受尿道下裂手术的父母之间的决策冲突。

材料和方法

共有 100 对接受过治疗方案咨询的夫妇同意参与。使用经过验证的问卷,即决策冲突量表,我们前瞻性地收集了与决策冲突相关的人口统计学数据、对包皮环切的偏好、教育水平以及对尿道下裂的先前知识。

结果

所有父母都选择了手术修复。28%的参与者存在决策冲突的证据(72%的评分<25,23.5%的评分在 25 至 37.5 之间,4.5%的评分>37.5)。父母总分(母亲为 16.1 ± 12,父亲为 18.3 ± 12.6)或子量表之间无统计学差异,除知情子量表(母亲为 16.7 ± 14.3,父亲为 21.1 ± 16.6)外。父母对尿道下裂的先前知识的自我报告和对新生儿包皮环切的偏好与较低的决策冲突量表评分相关(p = 0.02 和 p <0.01)。评分与父母的教育水平(p = 0.7)或咨询师的专业知识(工作人员与小儿泌尿科医师,p = 0.4)之间无统计学关联。

结论

这些数据描述了同意进行尿道下裂修复的夫妇之间的决策冲突水平,他们之间没有明显的差异。与降低决策冲突相关的因素的新颖描述可能有助于集中精力,尽量减少决策过程中遇到的困难。

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