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了解并克服美国少数族裔人群进行活体肾脏捐赠的障碍。

Understanding and overcoming barriers to living kidney donation among racial and ethnic minorities in the United States.

机构信息

Department of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD 21205, USA.

出版信息

Adv Chronic Kidney Dis. 2012 Jul;19(4):244-51. doi: 10.1053/j.ackd.2012.01.008.

DOI:10.1053/j.ackd.2012.01.008
PMID:22732044
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3385991/
Abstract

In the United States, racial-ethnic minorities experience disproportionately high rates of ESRD, but they are substantially less likely to receive living donor kidney transplants (LDKT) compared with their majority counterparts. Minorities may encounter barriers to LDKT at several steps along the path to receiving it, including consideration, pursuit, completion of LDKT, and the post-LDKT experience. These barriers operate at different levels related to potential recipients and donors, health care providers, health system structures, and communities. In this review, we present a conceptual framework describing various barriers that minorities face along the path to receiving LDKT. We also highlight promising recent and current initiatives to address these barriers, as well as gaps in initiatives, which may guide future interventions to reduce racial-ethnic disparities in LDKT.

摘要

在美国,少数族裔人群的终末期肾病发病率不成比例地高,但与多数族裔人群相比,他们接受活体供肾移植 (LDKT) 的可能性要低得多。少数族裔人群在接受 LDKT 的过程中,可能会在多个环节遇到障碍,包括考虑、追求、完成 LDKT 以及接受 LDKT 后的体验。这些障碍存在于与潜在受者和供者、医疗保健提供者、医疗体系结构和社区等相关的不同层面。在这篇综述中,我们提出了一个概念框架,描述了少数族裔人群在接受 LDKT 过程中所面临的各种障碍。我们还强调了一些有希望的最近和当前的举措,以解决这些障碍,以及举措中的差距,这些差距可能为未来减少 LDKT 中的种族和族裔差异的干预措施提供指导。

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Exp Clin Transplant. 2014 Feb;12(1):9-14. doi: 10.6002/ect.2013.0183.
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Identifying and addressing barriers to African American and non-African American families' discussions about preemptive living related kidney transplantation.识别并消除非裔美国家庭和非非裔美国家庭在关于前瞻性活体肾移植讨论方面的障碍。
Prog Transplant. 2011 Jun;21(2):97-104; quiz 105. doi: 10.1177/152692481102100203.
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Prevalence and demographic and clinical associations of health literacy in patients on maintenance hemodialysis.
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JMIR AI. 2025 Feb 7;4:e57319. doi: 10.2196/57319.
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Understanding the Role of Trust in Healthcare and Intentions to Pursue Live Donor Kidney Transplant Among African American End Stage Kidney Disease Patients.了解信任在医疗保健中的作用以及非裔美国终末期肾病患者寻求活体肾移植的意愿。
J Racial Ethn Health Disparities. 2025 Jan 9. doi: 10.1007/s40615-024-02229-0.
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Identifying when racial and ethnic disparities arise along the continuum of transplant care: a national registry study.确定种族和族裔差异在移植护理连续过程中何时出现:一项全国登记研究。
Lancet Reg Health Am. 2024 Oct 3;38:100895. doi: 10.1016/j.lana.2024.100895. eCollection 2024 Oct.
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Majority Rules? Assessing Access to Kidney Transplantation in a Predominantly Hispanic Population.多数规则?评估以西班牙裔为主的人群获得肾移植的情况。
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