Mueller Anna K, Fuermaier Anselm B M, Koerts Janneke, Tucha Lara
Department of Clinical and Developmental Neuropsychology, University of Groningen, Groningen, The Netherlands.
Atten Defic Hyperact Disord. 2012 Sep;4(3):101-14. doi: 10.1007/s12402-012-0085-3. Epub 2012 Jul 8.
Attention deficit hyperactivity disorder (ADHD) is a frequently diagnosed disorder in child- and adulthood with a high impact affecting multiple facets of social life. Therefore, patients suffering from ADHD are at high risk to be confronted with stigma, prejudices, and discrimination. A review of the empirical research in the field of ADHD with regard to stigma was performed. The findings of investigations in this field were clustered in different categories, including stigma in children with ADHD, stigma in adults with ADHD, stigma in relatives or in people close to a patient with ADHD, and the influence of stigma on authorities' attitudes toward patients with ADHD. Variables identified to contribute to stigma in ADHD are public's uncertainty concerning the reliability/validity of an ADHD diagnosis and the related diagnostic assessment, public's perceived dangerousness of individuals with ADHD, socio-demographical factors as age, gender, and ethnicity of the respondent or the target individual with ADHD, stigmatization of ADHD treatment, for example public's skepticism toward ADHD medication and disclosure of diagnostic status as well as medication status of the individual with ADHD. The contribution of stigma associated with ADHD can be conceptualized as an underestimated risk factor, affecting treatment adherence, treatment efficacy, symptom aggravation, life satisfaction, and mentally well-being of individuals affected by ADHD. Public as well as health professionals' concepts about ADHD are highly diverse, setting individuals with an ADHD diagnosis at greater risk to get stigmatized.
注意力缺陷多动障碍(ADHD)是儿童期和成年期常见的一种疾病,对社会生活的多个方面产生重大影响。因此,患有ADHD的患者面临着遭受污名化、偏见和歧视的高风险。本文对ADHD领域中关于污名化的实证研究进行了综述。该领域的调查结果分为不同类别,包括患有ADHD的儿童的污名化、患有ADHD的成年人的污名化、ADHD患者亲属或亲近之人的污名化,以及污名化对当局对待ADHD患者态度的影响。已确定的导致ADHD污名化的变量包括公众对ADHD诊断及相关诊断评估的可靠性/有效性的不确定性、公众对ADHD患者的感知危险性、社会人口统计学因素,如受访者或患有ADHD的目标个体的年龄、性别和种族、对ADHD治疗的污名化,例如公众对ADHD药物的怀疑,以及ADHD患者诊断状况和用药状况的披露。与ADHD相关的污名化的影响可被视为一个被低估的风险因素,影响着ADHD患者的治疗依从性、治疗效果、症状加重、生活满意度和心理健康。公众以及健康专业人员对ADHD的认知高度多样,这使得被诊断患有ADHD的个体更容易受到污名化。