“我们都在那里默默应对。” 阿斯伯格综合征成年患者父母的隐秘经历。
"We are all there silently coping." The hidden experiences of parents of adults with Asperger syndrome.
作者信息
Griffith Gemma M, Totsika Vasiliki, Nash Susie, Jones Robert S P, Hastings Richard P
机构信息
School of Psychology, Bangor University, Brigantia Building, Penrallt Road, Bangor LL57 2AS, Wales, UK. g.m.griffi
出版信息
J Intellect Dev Disabil. 2012 Sep;37(3):237-47. doi: 10.3109/13668250.2012.701729. Epub 2012 Aug 2.
BACKGROUND
The experiences of older parents of adults with Asperger syndrome have not been explored in the research literature.
METHOD
Four families who had middle-aged offspring with Asperger syndrome were interviewed (3 mothers and 1 couple), and the interviews were analysed using interpretative phenomenological analysis (IPA).
RESULTS
Six themes emerged from the analysis: (a) providers of "hidden" support, (b) role of advocate, (c) social isolation, (d) intrafamilial relationships, (e) support for parents, and (f) future concerns.
CONCLUSIONS
The findings of this study offer insight into the experience of parents of adult sons with Asperger syndrome. Implications for future support interventions and research are suggested.
背景
阿斯伯格综合征成年患者的年长父母的经历在研究文献中尚未得到探讨。
方法
对四个有中年阿斯伯格综合征子女的家庭进行了访谈（3位母亲和1对夫妇），并采用解释现象学分析（IPA）对访谈进行了分析。
结果
分析得出六个主题：（a）“隐性”支持的提供者，（b）倡导者的角色，（c）社会隔离，（d）家庭内部关系，（e）对父母的支持，以及（f）对未来的担忧。
结论
本研究结果为阿斯伯格综合征成年儿子的父母的经历提供了见解。提出了对未来支持干预措施和研究的启示。
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