Zare Mohammad, Rezaee Abolfazl, Zakiani Sholeh, Zare Amir
Ministry of Health and Medical Education, Tehran, Iran. zare1002yahoo.com
Stud Health Technol Inform. 2012;180:1197-9.
The present paper reports the results of a project aimed at providing Iran with a an online registry for breast cancer patients. A new ad hoc system/software has been developed in order to collect patients' data from the first visit to follow-up visits, including tests and Herceptin based therapy. The system has been designed to address both healthcare personnel needs, but also decision makers' information needs. After having identified in the country the laboratories performing the specific tests and the pharmacies that distribute Hercepting, the developed software have been installed in order to build the operational network representing the input points for the register. In 8 months of usage the results are: • Total number of Patients: 2240 inhabitant • Total number of doctors have participated in the program: 229 persons • Number of provinces contributing to the project: 17 provinces out of 30. Online registry of breast cancer is country's requirement because this system not only delivers services for laboratories, pharmacies and all physicians for their patients' follow up and monitoring, but also provides ability to access and analyze collected data for managers and experts.
本文报告了一个旨在为伊朗提供乳腺癌患者在线登记系统的项目成果。已开发了一个新的专门系统/软件，用于收集患者从首次就诊到随访期间的数据，包括检查和基于赫赛汀的治疗数据。该系统的设计不仅满足了医护人员的需求，也满足了决策者的信息需求。在确定了国内进行特定检查的实验室和分发赫赛汀的药房后，安装了已开发的软件，以构建代表登记册输入点的运营网络。在使用的8个月中，结果如下：•患者总数：2240名居民；•参与该项目的医生总数：229人；•为该项目做出贡献的省份数量：30个省份中的17个。乳腺癌在线登记系统是该国的一项要求，因为该系统不仅为实验室、药房和所有医生提供患者随访和监测服务，还为管理人员和专家提供访问和分析所收集数据的能力。
