脑转移瘤患者的护理人员：护理职责和社会心理幸福感描述。
Caregivers of Patients With Brain Metastases: A Description of Caregiving Responsibilities and Psychosocial Well-being.
出版信息
J Neurosci Nurs. 2020 Jun;52(3):112-116. doi: 10.1097/JNN.0000000000000500.
BACKGROUND
There are increasing numbers of cancer patients with brain metastases, and there is a high potential for caregiving burden. Little work has explored caregiving responsibilities and psychosocial well-being in informal family caregivers (FCGs) of cancer patients with brain metastases. This study aimed to address this gap in the literature.
METHODS
Data were drawn from baseline pilot study data. Caregivers completed demographic information and provided a self-report of their caring responsibilities and psychosocial well-being via questionnaire.
RESULTS
Participants were 21 FCGs of patients with brain metastases. Many caregivers are devoting extensive time to providing care; there was high variability in the number and types of caregiving activities reported. Although many caregivers report feeling well supported, other aspects of psychosocial well-being were less robust, including anxiety, depression, burden, and coping self-efficacy.
CONCLUSION
Although FCGs reported mitigating factors such as social support, they still experience significant distress. Findings support previous work suggesting that neuro-oncology caregiving is burdensome, with adverse effects on health and well-being. Foundational work, such as this, will set the stage to identify areas for future intervention.
背景
患有脑转移癌的患者数量不断增加，存在很大的 caregiver负担风险。针对脑转移癌患者的非正式家庭照料者（FCG）的照料责任和心理社会健康状况，鲜有研究进行探索。本研究旨在填补这一文献空白。
方法
数据来自基线试点研究数据。照料者通过问卷完成人口统计学信息，并自我报告其照料责任和心理社会健康状况。
结果
参与者为 21 名脑转移癌患者的 FCG。许多照料者投入了大量时间提供护理；报告的护理活动数量和类型差异很大。尽管许多照料者表示感到得到了很好的支持，但其他方面的心理社会健康状况较差，包括焦虑、抑郁、负担和应对自我效能。
结论
尽管 FCG 报告了社会支持等缓解因素，但他们仍然经历着显著的困扰。研究结果支持了之前的研究，即神经肿瘤学护理负担沉重，对健康和幸福感有不利影响。这项基础性工作将为确定未来干预领域奠定基础。
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