College of Nursing, University of Saskatchewan, Saskatoon, SK, Canada.
J Clin Nurs. 2012 Sep;21(17-18):2419-28. doi: 10.1111/j.1365-2702.2012.04182.x.
To explore the needs and preferences of parents and service providers of adolescents with type 1 diabetes in an online support intervention.
Parents experience stress during this time of transition as adolescent conflict is common and the consequences of risk-taking behaviour in combination with type 1 diabetes can be severe. Parents are in need of social support and desired an online intervention. Online support interventions have not been previously designed from the perspective of the users of these interventions.
Participatory, qualitative design. Fourteen group interviews across Canada (n=60).
Participants identified four main themes (Finding straight answers, Making transitions, Struggling with parenting and Connecting with others) within the context of accessibility. Parents described their needs for credible Canadian information, support from other parents, fostering positive family dynamics while shifting parenting roles during adolescence. Connecting with others included finding a social support system and venue to share stories and resources.
These findings are innovative as these experienced participants desired a blend of professional information and peer informal knowledge and support in an accessible, online format.
The results of this study will form the foundation of an online support intervention while providing unique insight into the experiences of parents of adolescents with type 1 diabetes.
Parents and service providers indicate the need for information that is trusted, accurate and on a wide range of topics, within a preferred online environment. Supporting parents during this difficult time includes directing them to appropriate and accessible resources, facilitating a positive, healthy process of transition to interdependence, in their parenting of adolescents with type 1 diabetes.
探索 1 型糖尿病青少年的父母和服务提供者在在线支持干预中的需求和偏好。
在这个过渡时期，父母会感到压力，因为青少年之间的冲突很常见，而且冒险行为与 1 型糖尿病相结合的后果可能很严重。父母需要社会支持，并希望有一个在线干预。以前，从未从这些干预措施的使用者的角度来设计在线支持干预措施。
参与式、定性设计。在加拿大各地进行了 14 次小组访谈（n=60）。
参与者在可及性背景下确定了四个主要主题（寻找直接答案、过渡、育儿困难和与他人联系）。父母描述了他们对可信的加拿大信息、来自其他父母的支持、在青春期转变育儿角色时培养积极的家庭动态的需求。与他人联系包括寻找一个社交支持系统和一个分享故事和资源的场所。
这些发现是创新的，因为这些经验丰富的参与者希望在可访问的在线格式中融合专业信息和同行的非正式知识和支持。
这项研究的结果将为在线支持干预奠定基础，同时为 1 型糖尿病青少年的父母的经验提供独特的见解。
父母和服务提供者表示需要可信赖、准确的信息，并且需要广泛的主题，在他们首选的在线环境中。在这个困难时期支持父母包括为他们提供适当和可访问的资源，促进积极、健康的过渡过程，实现对 1 型糖尿病青少年的相互依赖。
