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青少年哮喘和过敏患者的支持需求和偏好:“似乎没有人真正理解”。

Support needs and preferences of young adolescents with asthma and allergies: "just no one really seems to understand".

机构信息

University of Alberta, Edmonton, Alberta, Canada.

出版信息

J Pediatr Nurs. 2012 Oct;27(5):479-90. doi: 10.1016/j.pedn.2011.06.011. Epub 2011 Aug 25.

Abstract

The objectives of this study were to identify support needs, support resources, and support barriers for young adolescents with asthma and allergies and to describe preferences for an accessible support intervention. Adolescents (N = 57) completed a survey questionnaire. Eight young adolescents, 10 parents, and 5 older adolescents participated in separate group interviews. Young adolescents' challenges included transition to self-care, balancing restrictions with safety, social isolation, and loneliness. Young teens recommended supportive networks facilitated by older adolescent peers and wanted to meet with other young adolescents living with asthma and allergies online and share information, advice, and encouragement with them.

摘要

本研究旨在确定哮喘和过敏青少年的支持需求、支持资源和支持障碍,并描述对可及性支持干预措施的偏好。青少年(N=57)完成了一份调查问卷。8 名青少年、10 名家长和 5 名年龄较大的青少年参加了单独的小组访谈。青少年面临的挑战包括向自我护理过渡、平衡限制与安全、社会孤立和孤独。青少年建议由年龄较大的青少年同伴建立支持网络,并希望与其他患有哮喘和过敏的青少年在线会面,与他们分享信息、建议和鼓励。

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